hi...hope that you and your family are well...firstly you have a wonderful support network here on scope and people will do thier utmost to help when you dont know where you are going or whats happening???? (which will be alot LOL)
i didnt find this site until my daughter who is now 7 was 4 and the help and advie i have recieved from people here has been wonderful and i have also met great friends in the process...
there is another group that you caould join called "special kids in the uk" its wonderful, it isnt pre moderated so you can recieve answers almost straigt away...there are over a thousand members and someone always knows or can help with solutions to problems, we are also there tohelp eachother when we have bad days,,(which we all do from time to time, glad to say they are few and far between now eve is older)
so good luck with everything

kate xxxxx

oh on special kids i am under the user name evesmum...will keep a look out for you

Hi,

Just to re-iterate what Kate has already said. We learned more from these two sites than we did from any medical professional or book.

Good look and keep posting.

Best Wishes,

Glyn.

hiya & welcome to the forum...

I'll echo what the others have said.. i'm wendywoo on the 'other side', also www.hemihelp.org.uk is good too. :D

it is very daunting at the begining of it, my son was 6 months old too when the "professionals" finally believed that something was wrong with daniel. he was also referred for possible erbs palsy too but after seeing his first physio about 3 weeks later, she told us straight away that that it was his whole of his right side that has a weakness. she never said cerebral palsy but i knew that it was. about 3 or 4 months later he was 'offically' dx which is quite early compared to others on that i've spoken to. daniel is now nearly 28 months old and doing really well and can now walk unaided.

it all seems overwhelming at first, there so much to take in, so when you're not sure about something or just want to talk to people who understand, we're here.

I would say if you feel confidence with her physio then do what she says, pick their brains and ask LOADS of questions, get her play physio/stretches into your daily life as soon as you can, after a while it all comes part of daily life and I hardly think about it now. when I look back now daniel's poor phsyio used to get bombarded with a list of questions every time we saw her! lol :) i'm still the same now really tbh but a little bit more relaxed as daniel's progression has come on.

i've never read any books about cp, i've always got straight onto the forums and asked them or daniel's paed/ot/physio but someone else might be able to recommend one.

take care, wendy xxxxxx
mum to daniel (27 months) right sided spastic hemi CP & Joe (7 months)

Hi All,

I have a six month little old and initially the doctors diagnosed Erb's Pasly but they now believe that she has CP. We are still waiting to see of Peadetrician to get the diagnosis but the physio seems convinced she has it. Does anyone know of any good support groups, advice or books they could recommend?

Thanks.

hello im new here to,my son is 3 and has cp,i have come on this site to look for support and advice if you find any good books or support could you let me know,i got a book from the liabry that was ok,its called the cerebral palsy handbook,a practical guide for parents and carers marion staton and its recomended by scope