Can you help my frustration?
My main priority is trying to understand today what my babies prognosis is and what the future may be for my baby. I keep reading that you have to wait for milestones, but I dismiss this as many other's including TV documentaries can sum up/conclude a firm diagnosis at an early stage. My baby is now 5 months old. Two hours appox before being born a midwife confirmed that the baby had pooh in me, I had hbp during my pregnacy. Once in the delivery room various events took place. My babies FHR was up and down, the FHR Monitor became detached, the midwife inserted something in me and all blood was on the floor, and I kept saying I felt like I wanted to push but was being told, no not according to the monitor. At one stage I told the Midwife I really felt unwell and wanted to pass out. The midwife instructed my partner to look down there as the babies head was there, then it went back in, and kept doing this. The midwife said to expect a funny shape head, and to be ready to hit the red button IF instructed.My baby was born - hit the red button - my baby was floppy, had a white chest, and did not cry, floppy, the midwife just held her. I kept asking was my baby ok, but had no reply. The midwife put my baby on a table, and made no attempt to clear the airway. The rush team took over and performed this task. At 1 min the apgar score was <1 at 5 min the score was 5 and at 10 mins it was 7. HIE Grade 2 neonatal encephalopathy, severe perinatal asphyxia, sepsis suspected, grunting - transient, at delivery was hypoxic, a few hours after birth clinical seizures lasting 4 days Cord gas Arterial pH 6.7 and Venous pH 6.8. 1 day of ventilation. Cranial ultrasounds findings showed brightness of the midline. After 12 days we were both discharged and since then my baby has had about 5 Cranial ultrasounds where they are monitoring access CSF in the section mentioned. The CSF has today remained the same in size and continue to be an outpatient. My baby does not sleep well, has stiff legs, pokes toungue in and out on occasions, and has a stare that I just can not describe (not sunset eyes) just does not look right (not all the time) arm appears to turn in a little, and head can just drop. I would also welcome your views as I would like to progress a medical negligence case, why 1) Because I want the best care for my baby now and for the future, applying to the court for the award when my baby needs something, I want to give my baby the best money can get. 2) If the professionals are at fault I do not want anyone to go through this ever again - I have the view that my baby was normal prior to birth. Thank you