Hello
There are always stories of hope and this one inspired us. We have a long way to go still but when my granson was born he suffered hypoxic damage to his brain. He is now coming up for 3 and is having to 'learn' all normal movements as his wiring is back to front. The good thing is everything moves through its full range with no longlasting rigidity. Its hard work but we can see slow but steady improvements.
When he was born we were all in shock as he was in PICU and I spoke to my next door neighbour and she told me her son (then 5ish) was born in a similar way to elli but had more extensive brain damage and was very hypotonic (floppy). He did not hold his head up at all till around 9 months and they had to work and work to build up his low tone.Anyway at that time he walked talked and had normal intelligence. He was quite wobbly at times and 'a puff of wind would blow him over!' Anyway now he can run, hop (learned this at 6) needs help with his fine motor skills and uses a keyboard, but he runs and is pretty stable looking to me!. Our physio said it is easier to built weak muscles than work with tight muscles.
His story helped us enormously, I hope this helps you, but each child is different and sometimes the difficulties are more difficult to overcome, but its takes huge effort and a lot of optimism which is sometimes a difficult task!

Hi, Our little girl started off holdingher head very well to being very floppy at 6 months but with the help of physio day by day she is getting stronger, tummy time is the most important thing for head control as it help strengthen the neck muscles. Daisy has just turned one and her head is quite strong now, she still has a little wobble now and again but the work of our physios and the excercises that we do with her are key to her developing as best she can. It is an incredibly daunting experience but try to remember that your daughter will gain so much from the encouragement that you give her. x

hi, of course there is hope, if something ive learned since my son was diagnosed, its that the development of him will only depend on him, and the doctors doesnt know what will happen.

My son born when i was on my 24th week of pregnancy. now is 15 month old, and he hold his head, he can sit on a special chair and eat, and is starting to support better on crawling posittion.
He survived when he born, and he will never stop surprising me and doctors.

As Ghandi said, the Strength does not come from physical capacity. It comes from an indomitable will.

our boy, harry was also very weak at nine months and we were told walking and talking was a no no......nearly two years on he is runnin all over and conversating with us like a proper little tinker. His head is still not immensely strong and he looks like one of the thunderbird puppets when he walks/runs, my wife says!!, but he's amazing. We all are....we all just have different starting points in life. Some that little further back than others. With the right encouragement and positive approach they'll get there. Just be positive.