Premature Baby & Possible Cp- Botox Help/advice Needed!
My DS was born at 29+5 and at birth developed a cyst on the right hand side of his brain due to being starved of oxygen during delivery.
We were told that only time would tell as to how he would be affected by this, and it has become apparent that it is affecting the left side of his body. The consultant mentioned that he could possible have CP at an appointment last May, however, nothing has been mentioned since. He needed physio last year due to constantly clenching his left fist, but thankfully that problem has been resolved.
The main issue now lies with his walking. He is able to put his right foot flat when standing holding onto something, yet is unable to put his left foot flat without help. As soon as he walks using his walker, or cruises, both feet are raised onto tip-toes.
He was given AFO splints in January and Piedro Boots in March, yet unfortunately the problem is still there. Serial casting failed.
We are waiting for an appointment for him to have botox injections into his leg, but as chance would have it, the doctor who ran the clinic at the hospital where DS is being seen, retired a couple of months back and so we are still waiting for a new clinic to get up and running.
I just wondered if anybody knew of anywhere private we could possibly try? DS is 21 months (19 corrected), and Im prepared to do all I can to get him to take his first steps.