Selective Dorsal Rhizotomy (SDR)
We have just been told the success rate of this hospital in St Louis, America where they treat children with CP. Has anyone heard or had experience at this hospital for their child.
Our daughter is now three years old and has muscle tone weakness and stifness in her legs and has to use kaye frame to take some steps and we have to endure her through intense massage and stretching to help her loosen the muscles in her legs. We hope one day our litlle princess wil be able to walk and so we would be very grateful if you can provide some insight into this hospital that can make them walk.
The Selective Dorsal Rhizotomy Procedure
"Of all the surgical procedures currently performed on patients with cerebral palsy (CP), selective dorsal rhizotomy (SDR) has undergone more thorough scientific scrutiny than any other (including orthopedic surgery). Accumulated evidence and our own experience indicate that SDR is an excellent option for selected patients with spastic cerebral palsy. We believe parents and patients should inquire about SDR as a part of the management of CP before the patient undergoes orthopedic surgery"
"SDR involves sectioning (cutting) of some of the sensory nerve fibers that come from the muscles and enter the spinal cord".
Two groups of nerve roots leave the spinal cord and lie in the spinal canal. The ventral spinal roots send information to the muscle; the dorsal spinal roots transmit sensation from the muscle to the spinal cord.
Hi, My grandson flew to St Louis on Saturday 12 May and had his SDR op on 15 May - my daughter has skyped me and the difference in him already is amazing. He can wiggle his toes, something he could not do before. He can put his arm striaght up above his head - straight up no bends no finger clawing - amazing. We have been told by Dr Parks that he will be an independant walker - how great is that!
We found out last May (2011) that he had CP he was 1 year and 4 months old. We carried out intensive research in what could be done and found Dr Parks we immediately started fundraising. We were told by the NHS that he would not be a good candidate for SDR - WE IGNORED THEM.
We sent the application and Video this Christmas to Dr Parks and within 2 weeks recived the amazing news that HE WAS AN EXCELLENT CANDIDATE FOR SDR.
Ignore the NHS they are only concerned about costs not about the quality of life for the CP sufferer.
Ask me what you like and if I can help you I will.
Never take no for an answer there are always options - good luck
Hi,
Can I ask what type of CP your grandson has? My little boy is 18 months and has quad CP. Everything I'd read about SDR suggested it was only suitable for dyplegia, or on some occasions quad CP where the arms are only mildly affected. From reading your description though it sounds as though the operation has helped his arms and hands as well. It would so wonderful if my little lad could have use of his arms and hands - to be honest I worry about that more than I've ever worried about walking.
It's great to hear that your grandson is doing so well. I bet you can't wait for them to get to home so you can give him a big hug.
Best wishes to you all,
Nicola
Hi
My name is maria and my daughter has cp. we live in miami and her doctor want to perform the surgery here but I am no really convinced with the idea. Since we knew she woul need the surgery I wanted to do it in St. Louis but her insurance won't pay it. How do you manage to get the money?how much it would cost? Sorry for my questions but I am pretty desperate because I have the future of my daughter in my hand and I don't want to make a wrong decision
Thanks maria
Hi
Look at my comments under Baclofen Pump.
Imogen37
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