CP & very heavy, painful periods
I thought I'd post about this, as it's of a real worry to me. I started my periods at age 9, and had an early growth spurt. My GP at the time thought all this was related to being so prem, as if the process was sped up. I've never known what to think of that.
I was born at 29 weeks, one of twins (my twin died) & I've got quad CP , hydrocephalus. ,& am registered blind. Since age 11, I've been going to see countless doctors, gynecologists & GPs about this, but to no avail. I was told by my then-GP to take the pill , I didn't take it. I found after that the pill isn't recommended for people with neurological conditions and reduced mobility as there's more risk of DVT and similar conditions. Everyone's stumped by this. I've been told of and recognize the link between stress levels and hormones. I build relaxing into my day and do what I enjoy such as reading, watching tv, keeping in touch with friends and trying not to get down about things. I've tried everything Ive wanted to that's been suggested: trying to relax more, finding the right sanitary protection, and more recently Tranexamic acid to reduce pain and bleeding. This has reduced the pain seemingly (am nearly pain free) the same happens with Feminax, which I have also tried, but neither reduce the volume of bleeding. Before that, i tried paracetamol and ibuprofen, which did nothing at all.
When I was at school and uni, I had to take time off due to my periods, and now they don't let me do what I want. This is especially bad in summer when I can't go to the pool as I'd like! Due to my needs I need support in everything and care when I have my period too. The pain often causes extremely bad headaches, cramps and sickness. I've been to casualty a few times due to my periods, and take iron tablets as suggested by my GP and gynecologist to help with anemia. I try to eat as balanced a diet as possible. On discussing this with my carers who've witnessed it, they recommend a hormone injection or the coil. Some of my carers had to have a hysterectomy due to period problems, I wish to have children with my partner, who's also very worried and supportive about my periods, as he's one of my carers too.
My GP has said I'll have to have the coil if the Tranexamic acid doesn't work. I'm apprehensive as my mum and several people in my family had it and didn't get on with it. I mentioned it to my incontinence nurse (i suffer severe urinary incontinence), she suggested multivitamins, evening primrose oil,& iron. I'm taking evening primrose oil, I find it helps mood swings before and during a period.
I've had endless blood tests for hormone imbalance and poly cystic ovarian syndrome (apparently negative but I didn't see the result).
No one knows what to suggest.
I'd like to know if anyone experiences similar problems, and whether there's a link with bad periods and CP.