Dribbling In Kids With C.p
I am a mum of two disabled kids aged 8 year old son that has CP and a 11 Year old daughter thay both have Spad Quad CP I am there main carer i am married have been for 15 years now both of the kids need a high amout of care every day as you know. My daughter keeps on having chest infections but outhere than that i get on well looking after them thay are both in nappies. The problem is bot of my kids dribble loads i have been to the doctors the kids can have about 3 bib changes a day from when thay get up to thay go to bed about 7ish what can i do can someone help.
Paulen
Hello Ladies!
My daughter dribbles constantly and we decided against surgery. Patches caused her to pass out.
Please take a look here:
www.DignityCare.co.uk
No profit is generated from this website and it is not a business.
Hope this helps in some small way!
Best wishes,
Wendy & Laura
Hi there
I have been to the doctors this morning with both of the kids and we are getting those patches that are put behind there ear and changed every 4 days the dr thinks that will work we will wait and see what happens
Paulen
patches stuck on behind the ear often help but I can't remember the name perhaps others know. My son had an operation to change the orientation of one of his salivary glands which helped a lot. Ask your G.P to refer you.
I am a mum of two disabled kids aged 8 year old son that has CP and a 11 Year old daughter thay both have Spad Quad CP I am there main carer i am married have been for 15 years now both of the kids need a high amout of care every day as you know. My daughter keeps on having chest infections but outhere than that i get on well looking after them thay are both in nappies. The problem is bot of my kids dribble loads i have been to the doctors the kids can have about 3 bib changes a day from when thay get up to thay go to bed about 7ish what can i do can someone help.
Paulen
I have mild CP and dribbled up to the age of 11-13. The front of my clothes was always wet.
I left special needs day school and went to a normal primary school as a boarder.
What years of patient reminders to swallow at home could not achieve, 2 years of teasing, nasty, tormenting peers did very effectively. I did not have a dribbling problem at high school.
I dont recommend this approach, but the difference was that I had a lot more exercise at the boarding school, which I think strengthened my whole body.
My mother used to tell me that when I was little, she had a prescription for pills that dried up the siliva - she could never remember what the were and had lost the prescription, but may be worth investigating.
Around that age I also rebelled against wearing a vest - dont know if feeling the wet more had an influence - it only occurred to me now. I have discovered recently that I cannot read my body like others seem to and find visual feed back the most effective corrective. Mirrors are cruel, but you can learn to be selective in what you see.
I am doing ABR therapy at present, and they say swallowing problems are due to the muscles of the neck not being in the correct position - maybe neck exercises or a chiropractor might help.
All the best
Cathy
Hi my daughter who is 3 has been on the scopoderm patches which stick behind the ear and they worked like magic until she developed dilated pupils about 4 months into the treatment (this is quite rare though) I would suggest trying these as all side effects dissapear after you discontinue use. We are due to go and see a consultant in about 30minutes to see if he can suggest anything else so if I find anything out I will let you know!
Hi Paulen,
My son (aged 11) has spastic CP and dribbles lots too, it's frustrating as his clothes get absolutely soaked and he gets a bit sore. He had an operation to relocate his saliva glands which helped alot but as he tends to lean forward he still dribbles quite a bit. He now has Hyoscine patches which we put behind his ear/neck, they are absolutely brilliant, he is completely dry now. Speak to your GP or Consultant Paediatrician and ask them if you can try HYOSCINE patches. Hope all goes well, let us know how you get on.
Kind regards,
Sarah
PS
You are a star caring for your two children so well. I only have one child with severe CP and two younger children and I find it very difficult at times. Do you have much support from family or a carer to help? I don't get any family support apart from the rare babysitting for an evening a couple of times a year. We have a carer come for 4 hours a week.
Hi my daughter used to dribble when she was younger and also had the patches but she reacted to them. BUt the active ingredient in the patch is also in Kwells so the consultant advised us to crush and give the pill in a small amount of drink which worked for her. I think there are also other medicines which have the drying affect on the mouth that can be given as well its worth discusing with a gp/pead to see if there are other options as well.
I work in a special school. Lots of the youngsters wear the patches which work for most children, although some develop problems with diluted pupils, but patches can be cut in half or quarters if this helps. Tend to fall off in swimming pool! About bibs, the older youngsters wear neckerchiefs which have three layers including a waterproof layer - available from a company called Fledgelings which specialises in children with special needs (have website) - practical and trendy! Also sometimes on Ebay - search under 'special needs'.
Hope this helps.
[quote name='paulen001' date='Feb 8 2008, 12:15 AM' post='16538']
I am a mum of two disabled kids aged 8 year old son that has CP and a 11 Year old daughter thay both have Spad Quad CP I am there main carer i am married have been for 15 years now both of the kids need a high amout of care every day as you know. My daughter keeps on having chest infections but outhere than that i get on well looking after them thay are both in nappies. The problem is bot of my kids dribble loads i have been to the doctors the kids can have about 3 bib changes a day from when thay get up to thay go to bed about 7ish what can i do can someone help.
Paulen
[/quote]
Hi Paulen
What a great mum first of all, to have 2 beautiful children with additional needs and cope the way you do.
My son will be 11 in July, he was put on Glycopyrrolate Tablets for his dribbling which did slow it down but not stop it all together and also suffered with lots of chest infections. Due to having a Fundoplication and Gastrostomy last year he was struggling with his saliva being slightly thicker and not being able to swollow as well. So they stopped the Tablets which then caused lots of chest infections from aspirating. On the 23rd May my son had the opperation to remove his saliva glands, which is done from under the jaw line in the crease of the neck. The op took just over 2 hours and we were out 24 hours later.
Have allready noticed the difference with his dribbling. No more bibbs and a very happy young man.
We were advised to go on the tablets and not on the patches as the patches also cause night mares.
Yes it does make the pupil of the eye larger but for my son who weres glasses we just made sure thet he had reactor light to protect his eyes from the sun.
You need to discuss with your consultant at the hospital about this problem to see what would be the best move for your children and if that doesn't work keep going back till you find some thing that works well and that mum and children are happy with.
Hope I have helped
Good Luck
Mandi
hello!
my son is 6 and has glycopyrronium (robinul) tablets 2mg twice daily for drooling, this does work but i notice still that he drools more when run down or when he has a cold etc. we never got offered the patches, not sure why but these do help somewhat.
hth
ruth :)
Hi all
My little girl has right sided hemiplegia and is 16 months old and seem to dribble alot more than other children her age, even the health visitor picked up on it yesterday saying it look bit much, We never thought it was down to the condition but could it be?
Hi I work with children in a special school and many of which have excess dribbling, all of them now wear the patches behind their ears, it works amazingly well.
sorry I don't know any of the details.
nellie