Hi, I'm 26 and have cp that affects my legs most.
I have found that as I've got older my muscles have got tighter and more achy. In january I got to the point that I felt I could no longer just get on with it, and went to see my GP. He suggested I try a muscle relaxant called Baclofen, I can't begin to tell you what a fantastic change it has made!! I am alot more comfortable, have more energy and it has made doing physio easier and less painful.
I also use afo splints to help maintain the muscle length and make me more stable on my feet which helps with the tightness and pain in my feet. I also try to stick to a physio regime where I keep my muscles well stretched, I use leg gaiters to help with this, wearing them as much as I can overnight and for a while during the day.

Before I started the Baclofen, I used to have a couple of warm baths a day to help realx my muscles.
I get pins and needles in my feet, but that has got less now my muscles are more relaxed
hope this helps
chris

Hi there,

I use baclofen and diazepam if it is really severe.
I also swim and use heat pads.
Yes I get pins and needles alot I'm not sure why.

I have set up a website for adults with cp. I'm looking for more members to post quest and stimulate debate
www.healthunlocked.com/livingpositively

Thanks,

Rachael

Hi Chris,

Thank you for your reply!
This has been incredibly helpful it's another route to go down if the pain persists!
I've just got some new piedro boots haven't worn them since i was a kid it's taking me a while to adjust but i'll wait to see if they help before i go to the gp.

Thanks again.

Amy

Hi Rachel,

Thank you for your reply!
It's odd about the pins and needles it's always baffled me!
No probs r.e your website i will check it out now.

Amy

hi amy,
I wear piedro boots when not wearing my splints.
They are the best footwear I have found to support my feet.
chris

Hi,

I don't know about pins and needles but I have found that when my leg goes into spasm and/or tight then a TENS machine works wonders. That and a gentle leg rub by my other half at least once a day.

Hello Weebs1986,

I haven't heard of pins and needles in people with CP before. If it continues I think it could be worth checking with your GP.

All the best.