Its Not all Doom and Gloom.
Many of you will be new parents of Cerebral palsy children and thinking OMG what now? how will we cope? how do you do this every day? EVERY CHILD is different and every child with CP is different. Experts can say oh they Won't do this they'l never do that but OUR children have habits of making them into liars. I'm NOT here to give false hope as I don't know you and I don't know Your child but listen to the experts and store it away Don't let it stop you encouraging your children and having a bit of Hope. My child was born at full term There wasn't anything that really stood out and Screamed there is something wrong So we had 12 months of "normallity" with niggles of oooh mmmmm not sure about this. My daughter is now 13 and had moderate Spastic diaplegia cerebral palsy she had the usual treatments of CP the pedro boots, splints(afo's) Botox, Baclofen,physio etc then she had multi-level surgury last year. I'm not saying its been easy because it hasnt there has been times of frustration, anger, resentment (not of her just at the situation), inability to cope and that was just me. She now walks with crutches and uses a wheelchair but she has just got into Disability swimming which has been really good for her its something she CAN do. She has been in 2 reginal competitions and got top girl at one and she went to the Nationals and got a silver medal. No-one could predict this poor little thing with CP would do so well. She is lucky and doesnt have a lot of other problems going on too. We have had to fight for everything for her from being allowed to do her bikeability training on a trike to physio and aftercare. It is so easy to get wrapped up in all the care needed that we can forget what wonderful children we have. Always try to encourage them to reach for the stars however far away they are. It could be a smile, or a look at you or something so much bigger. Take each day as it comes and try to find one thing to smile about each day. (usually its the kids themselves) I HOPE this has made someone smile LIFE is a worry (even when child doesnt have problems) and can get pretty hectic with hospital appointments But Our children will Shine through and show them all.