jumpyness/jittering
Hi I wondered if anyone can offer any help or advice? My son is 26 and he jumps really badly at the slightest thing and although he has done it since he was little it is getting much worse. Any loud noise, door slamming, someone shouting, pipping of a horn, anything really. He is really aware its getting worse as he has been to the doctors about it, but the doctor has put it down to anxiety and prescribed beta blockers.he has asked him to keep a record of his mood over the next 2weeks and then to go back and see him. he is not happy with this diagnosis and is not willing to try the beta blockers. he is not or has never been an anxious child/person, he has an amazing social life, job, group of friends and a family who love and support him. He also shakes and this is something he has always done, (not great for playing darts). I wondered if anyone else suffers with this? Is it something that people with CP suffer from, can anything be done to help? Many thanks
Hi, my ten year old daughter is the same, especially when shes tired or sitting in her wheelchair in a busy place.... she has CP, hydrocephalus and other problems including seizures and a skull defect which doesnt help..... One thing ive found thats helped has been a weighted lap pad in the day and a weighted duvet at night... they have a calming effect and have definitely helped Meggy.... we got ours from www.togs4specialsprogs.com they do a full range even for adults and a shoulder wrap for out and about. Hope this helps!
Hi, I'm 30 and have cerebral palsy and hydrocephalus, am registered blind and have seizures. My startle reflex is triggered by loud and sudden noises car horns doors opening and closing suddenly, phones ringing, people coughing or sneezing or talking loudly nearby. I'm interested to try the range of products you suggested, hopefully I'll find something to help! I find I'm shaky after being startled and people don't often know what to say or do or how to react. Like your daughter's, mine are also exacerbated by tiredness and being in busy environments.
(see my user name!!)
I never cease to be horrified at what GPs don;t know.....your son sounds as if he has the pretty commonly found exaggerated startle reflex that is common to many poeple with CP....
It is nothing to do with anxiety...it is because the control of reflexes is affected by the CP. And I think there was a post on here a while ago about someone with something very similar where it seemed to be getting a bit worse as they got older...
Not sure what the answer is, but pretty certain its not beta blockers.....!!