Silcworm
'Satisfaction In Life for Children With Own Report Measures'

Quality of Life measures help to assess wellbeing. Currently there is no online child friendly measure to assess the quality of life of children aged 4 to 10 that can be used to help assess the treatment of their long term medical condition(s). We hope that this game will be useful in a clinical setting and be very popular with children. The project has ethics approval from University College London (UCL).

We are looking for child volunteers who have been diagnosed with an illness/condition who are developing normally and are aged between 4-10 years. We are hoping to study around 1000 child patients in total. As a parent/guardian you will be asked to complete a consent form on behalf of your child/children. Your child/children will play the e-SILCWORM game on a website and give their feedback to a set of questions as they move through the game. You are welcome to see and play the game if you wish.

There are no risks and/or discomforts in relation to this research. We hope that children and their families enjoy taking part, as have families in similar projects in the past. The data obtained in this research project will be handled with complete privacy and access to research records shall be limited to the research team.

Who shall benefit?
The treatment of children who are exposed to on-going medical monitoring and treatment should be assessed in a thorough, but enjoyable, manner. Quality of life is now one such measure which can assess medical care. Therefore, we hope that e-SILCWORM will help medical and other allied health professionals to understand more about the effect of long term medical treatment for young children and therefore contribute towards their better care. If you have further questions and/or worries, please email silcworm@ucl.ac.uk.

What Next?
Click or cut and paste this web site into your browser: http://www.wazdaka.com/silcworm/
Follow the instructions on line. If your child's condition is not listed please enter it in the free text box at the side. If you wish to try the game yourself please write 'test' in the condition box.
Thank you for considering taking part in this study.