[quote name='jilli' date='May 11 2008, 07:56 PM' post='20496']
Please let me know if you got any further in your quest to find groups for people to meet who have C.p. [/quote]

I have only you on this forum that came back to me with anything. I set up a web group on face book for CP'er in yorkshire area but I have no quiries at all from it. I know it's very eaasy to become a recluse as there is no socal thing out there. So that it why I am trying to set something up put its just getting people to know about it when you know no one in the same boate

Please let me know if you got any further in your quest to find groups for people to meet who have C.p. I am trying to help a friend who has a wonderful daughter with C.P. She is now 22 and has become more and more of a recluse due to not being able to relate to others and mix in a setting she is comfortable with.

Karen

That is the problem that I discovered is to try and getting people to meat up as just live so far apart.. My idea is to have groups set up all over the country but the area will be big. For Wales itself there would be about 2 groups if lucky. North and South Wales. As I live in Leeds Yorkshire I would be Yorkshire and Lancashire group. There would be one for Northumbria and Cumbria, ect so the catchment area will be big. But once groups gets up and running they will be smaller area groups which would be easier for people as there will social groups the smaller area the better. And IF we get big enough we could see other groups for social activities ect.

So far I have the Yorkshire / Lancashire group on facebook to see any interest but not 1 response as yet.

Malachy

I was wondering does any one meet up with other who has CP as people with mild CP will probably lives independently and work or looking for work. I have discovered we can only share our thoughts on line through different Forms rather that meeting face to face. You could meet any one of us in the street but walk past each other. And if we do not set groups up across the country we will never meet up.
When we were at school we were too busy keeping up with our able bodies pears we had no time to meet up with others that might have CP and you were probably like me being the only disabled person in the school. When we went to Uni. or moved out of the family home we were probably too busy trying to survived and after wards trying to find employment but you reach late 20’s early 30 I have discovered the I now have time see around me but the body start to slow down but you do not have no one to share how the body has change and meet up with people whose bodies are changing similarly at a simulate age to you as you have nothing to fall back on because everyone in you life up to now is able bodies. And the ones who you work with would be doing thing that you know too well your body could not hack (it might have 10 years ago but not now) so you are basely on you own tod.

I have mild cp I am 43 and had problems with my body slowing down, all my mates are able bodied I find it very frustrating, just to meet up with people who are going through the same thing I get weird sensations through my body hands going numb (which is borderline carpel tunnel) I would love to meet up with others with milld cp as i would like to find out if other people are having same problems. i do stretching exercises every day just to keep going.

Hiya, I also have mild CP and I am 46 it is very frustrating when you cant do what you used to isnt it. I agree it would be good to meet others in the same boat. I am hoping to attend Megan Baker House soon, as they are starting courses for adults with CP. Have a look at their web site. Just put Megan Baker House in the search engine.

Nobody on here says where they are located - it might help to know if we are to meet up!! I live on Anglesey, in North Wales. WHERE ARE YOU?????

All the best

karen

I have a 55 year old sister in law suffering from CP. My husband and I have managed to get her into a very nice sheltered apartment, but unfortunately all the other residents are elderly. My sister in law is desperate to get out and meet people. We have not been able to find any meeting or clubs that are available in the Chelmsford area, if anyone has any further info on anything happening for disabled older people. I would love to hear. Also she would like to go on holiday in England, but again finding anything that caters for older disabled is very difficult.
Hope someone out there can help me.

So far I have the Yorkshire / Lancashire group on facebook to see any interest but not 1 response as yet.
Malachy
[/quote]

Hi Malachy-

Would definately be interested in getting involved in somthing involving the yorkshire region -whats the face-book group actually called?.

best wishes

stevie

Hi I am am posting on behalf of a young man called amby. We are based in Derby and wonder if anyone would like to meet up sometime to talk about the possibility of forming a fab club for over 2o's in Derby.

(NOTE FROM FORUM MODERATOR - Sorry under the rules of this forum we are unable to facilitate direct contact between individuals. If it is a PHAB club you want to start perhaps you could do it via PHAB ?: http://www.phabengland.org.uk/)

hello
I have just got back home from holiday so have only just got up on the forum.
I also have mild cp. I am 63 years old and much more disabled than I was say 3 years ago. I also hve good days and bad days. Would love to meet others. I am in the south west.
Cheers belle

[quote name='steviel' date='Jul 2 2008, 09:43 PM' post='22739']

Would definately be interested in getting involved in somthing involving the yorkshire region -whats the face-book group actually called?.

best wishes

stevie
[/quote]
Cerebral Palsy support group (fully independant only Yorkshire/Lancashire)

[quote name='nbarnes' date='Jun 30 2008, 01:25 PM' post='22626']
(NOTE FROM FORUM MODERATOR - Sorry under the rules of this forum we are unable to facilitate direct contact between individuals.)
[/quote]

This seems quite unhelpful to me. What is the logic behind this rule?

Most forums allow Private Messages to be sent between member.

My main reason for joining Scope Forums was to contact others with CP.

Steve

Hello Steve

Scope's forum is premoderated and we do not facilitate contact between members because we have a duty to protect users of our forum, some of whom may be vulnerable.

Social networking sites such as Facebook, My Space and Bebo do facilitate contact, albeit between invited "friends", so perhaps this may be the route for you to try.

Please contact us if you would like to discuss this issue further.

Kind regards

Forums Moderator