Hi
I also have mild cp and found as I got older I stiffened up more and had more falls etc. My gp also tried me on baclofen which I didn't get on with it relaxed my legs too much and I could hardly stand.

Try going back to your gp and seeing if you can be reffered for physio. You tend to have to fight for it as an adult and after a while I found that they were at a loss to know what to advise. But it did mean that I got to try out different walking aids, walking with a walking stick, walking with 2 walking sticks, walking with a frame with a seat etc. They also gave me some exercises to do.

Maybe if you told your gp you wanted advice from a physio on if a walking aid maybe useful and which one, and also advice on any exercises they maybe able to suggest. They maybe happier to reffer you.

If due to muscles being tight you are getting pain enquire about the possibility of being reffered to pain clinic again many different options that might help if you are in pain.

With regards medication there are many different muscle relaxants, anti immflamtory tablets etc that could help so discuss that with them to. I worked my way through a number of different tablets before I found ones that help me.
I also now use a wheelchair when I go out because the pain was also creating a lot of fatigue and I found I could do more if I was in a chair than if I was walking because I didn't get as tired. A chat with your local wheelchair service should be able to help you there again they may also let you try one for a few days so you can see what you think and how you get on.

I hope some of this has been helpful to you, good luck
Helen

hi Helen
thankyou for your advice i did go to the docs and he has reffered me on to a phyiso but have not heard anything back yet
The Baclofen seems to be creating more pain and lots of clicking and cracking bones i am so silly as i used to have physio as a child /teenager but thought i was not going to get old and things werent going to affect me so i gave up on my exercises how wrong was i . have been looking into getting a wobble board to inprove on my balance . i am so glad that there are places like this to come to knowing that there are nice people to talk to and are going through the same thing
thank u x

Hi
Your post made me laugh I think we've all been there and felt the same, like you I had physo as a child and older and hated doing every minute of it!! Like you I didn't believe the things they told me could happen would happen to me. But I guess at that time they also didn't know as much as they know now.

My problems really started when I was working and living independently I was in a job that involved alot of standing and walking etc as well as walking to and from the train station every day to get to and from work. I guess juggling independent living and working was harder than I thought it would be.
Now most of my problems are pain and fatigue related which is something that I wasn't aware could happen and came as a bit of a shock. There are good days and bad days the weather tends to affect things alot and there are days it really gets to me but you kind of learn to live with it. It's been hard but it has meant I've had to make adjustments not just in how I do things but also in my thinking.
I just hope that my expierences can help let someone like you know you're not the only one going through these issues

Have you read the cp and ageing factsheet on here under help and information it might also help by letting you know you're not alone with these problems.

Take care
Helen