Scope, funded by the Department for Education, is producing information, guidance and training materials to help all those who support children and families where a child or young person has cerebral palsy.
We have reached the end of the second quarter and have made progress in several areas. We continue to work with the Disability Nurse training team at Nottinghamshire University to create an online interactive resource designed to help practitioners and parents understand more about the emotional and practical journey families take when a child is diagnosed with cerebral palsy. Contact us if would like to contribute to the CP Toolkit.
Parents have given us hints and tips they wish they had known when they started out and we are including these in our training.
We have continued to work with young people’s disability group Trendsetters, to look more closely at the issues that face them in school. Katherine has already filmed her own YouTube offering “Normal” where she considers her daily routines. View Katherine’s video.
You can also read young disabled people talking about their experiences of bullying.
Last quarter we surveyed over 300 early years and Key Stage 1 professionals and practitioners to find out how confident they feel about including a child with cerebral palsy. While many were confident in the practical aspects, challenging behaviour, communication and group play all were flagged as areas where they would like more support. Many also mentioned that the rooms and buildings they work in are not readily adaptable to a child who needs more floor space or has a individual items of equipment.
We have arranged visits to some schools and special needs groups to start our fact finding about what the barriers to learning are for children with cp. The Rainbow Centre in Fareham has been supporting this work.
We have researched online sources of educational help for parents and teachers and this is available for review.
If you would like to be part of our group, review work we have undertaken, suggest what the toolkit should include or share emerging or good practice, please contact us and let us know how you would like to take part.
We welcome teachers, parents, young disabled people and anyone interested.
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