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Talking to other parents in a similar situation is often the most effective emotional support. You can read parents’ stories and conversations online if you do not feel comfortable talking.
Not all conditions or experiences will be the same, especially if your child’s condition is rare or undiagnosed. But parents of children with different conditions can still support you.
Some charities and voluntary organisations can give you extra support with your child’s condition and connect you to parents with similar experiences.
Some people prefer to talk face to face while others find it easier to chat online.
Support for syndromes without a name (SWAN), rare, or genetic conditions
Reading about similar experiences can help you find out which challenges parents faced, how they tackled them and how they felt.
Find out how @Scope is helping people to feel more confident about disability. Help us #EndTheAwkward http://bit.ly/2egoZQx