Hi Everyone, im new here, my name is nerea, my son is 15 months, he just been diagnosed with spastic quadriplegia, cp. We ve being referred to a lot of groups but never met anyone in the same ...
Discussion in Children, parents, and families - 16 Apr 2012
The quotes below have been taken from this article on The Metro. The Children’s Minister has moved to reassure parents of children with Special Educational Needs and Disabilities (SEND) that they are ...
Discussion in Children, parents, and families - 26 Dec 2020
I am one of many parents that have met on Facebook support groups. Our link has been the difficulties we have faced applying for SEND and EHCP assessments and even diagnoses. We have helped each other ...
Discussion in Children, parents, and families - 19 Feb 2018
About: Rare Autoinflammatory Conditions Community - UK RACC - UK is the UK’s patient-run, patient support group for patients and families suffering from #Rare Autoinflammatory conditions. We are a ...
Discussion in Rare, invisible, and undiagnosed conditions - 18 Sep 2019
Hi My son is 10 and diagnosed last year with autism. He was failed time and time again by his last school which delayed his diagnosis. He has been in his new school for 18 months and they have been ...
Discussion in Education - 17 Jan 2020
Information taken from indy100: What is the Spectrum 10K DNA study into autism - and why are autistic people concerned? What is the Spectrum 10K DNA study into autism? Branded “the largest study of ...
Discussion in Autism and neurodiversity - 8 Sep 2021
In 2015, the World Health Organization (WHO) estimated that 322 million people worldwide experience depression and a further 250 million people have an anxiety disorder. If you, or someone in your ...
Discussion in Cerebral palsy - 10 Oct 2021
Firstly, I openly admit that my first born son led me into a false sense of security as far as parenting was concerned. It just wasn’t particularly difficult. A shock to the system, yes, and ...
Discussion in Disability rights and campaigning - 9 Feb 2017
Hi everyone. This is my first post. I am a carer for my partner, although I do have anxiety and fatigue problems of my own. I've been 100% financially supporting him with just my benefits for ...
Discussion in Children, parents, and families - 26 Sep 2018
Hi all Im looking to connect with any parents or groups. My son has not long turned 3 and we had an appointment just where the paediatrician thinks he may have autistic traits. She said she thinks he ...
Discussion in Autism and neurodiversity - 22 May 2021