Disabled people’s experiences of social care

Key findings from Scope's research into social care for disabled people

Disabled people under 65 are a third of all social care users, but too often social care is viewed as an issue that only affects older people.

To understand how social care affects younger disabled people – and the impact of the funding crisis – we spoke to 500 disabled people aged 18-64 who use social care. 

They told us they are waiting fourteen hours to go to the toilet, sleeping in their clothes, being unable to eat or wash and left socially isolated.  

Over half of disabled people using social care (55 per cent) can’t get the support they need to live independently. Fewer than one in five disabled people (18 per cent) get the right social care.

  • One in three (33 per cent) who get social care expect it to get worse in the next five years.
  • One in ten disabled people (10 per cent) fear they will lose support entirely. 
  • 83 per cent of disabled people don’t have enough hours in their care package. 41 per cent of disabled people get no choice or control over their care.
  • Only one in eight (13 per cent) disabled social care users aged under 35 are currently getting enough support working or looking for a job.

Find out more 

Read the full report - Disabled people’s experiences of social care (opens a PDF) 
Read the executive summary online (HTML/Accesible version)