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Your friends and family may find it difficult to accept that your child has different needs. This could be for a short time or they could stay in denial. You may also feel that they’re judging you as a parent. Other parents of disabled children may find it easier to understand what you’re going through.
“I’m scared because he keeps having fits so I cannot allow myself to sleep. I’m so exhausted from being up all night, every night.”
“I’m finding it very difficult to cope with working and all the appointments my son has. We do not know long each appointment is going to take, and it’s stressful.”
“I feel so confused - there are so many things to cope with. There’s hospital appointments, medical jargon and equipment, when all we want to do is just quietly be with our baby and have a ‘normal’ life.”
“Sometimes I find it difficult to talk to my partner. They’re in denial about our child being disabled. I feel like I have to be the one to ask all the questions, all the responsibility seems to be resting on me.”
“I’m really worried about how this will impact on us financially. There’s no way I can go back to work, I’m going to have to be a full-time carer.”
“Having a disabled child has been a real shock for us. We did not ‘ask’ for a disabled child. Please don’t tell us we have been ‘chosen’ or our child has been sent to us for a reason because we are special.”
Often people can be uncomfortable and unsure how to respond to the news that your child has additional needs, especially if they don’t know any other children who are disabled. Try to remember your child is a child first and foremost. They need love and support. As far as possible, try to give your child the same life experiences as you would any other child.
They may also be worried and upset. Or they might even deny that anything is happening. Like you, they may be coming to terms with new emotions. Give them time to adjust.
I found friends were more than happy to help – you just had to ask.
thespiceman said: Hello @susan48 Thanks just been Friday feeling. Where the week gone. SHAVING Foam
Hello every body good morning beans talking my sort of language, love them. All sorts love my Italian varieties Cannellini and Borlotti lovely.
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