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SDR was first developed in 1898, but has become more popular over the last 30 years as techniques have advanced. It's a neurosurgical procedure aimed at reducing spasticity (tight and stiff muscle tone) in the lower limbs. It's mostly used for children with spastic diplegia (two limbs affected). Spastic diplegia accounts for 25 to 30% of children born with cerebral palsy.
The surgery aims to:
The National Institute of Clinical Excellence (NICE) has issued guidance that SDR is most effective for children between 4 and 10 years of age. In America the surgery may be performed on younger children.
In general, SDR in the UK is not possible when the following are present:
Like any medical procedure, SDR can carry risks. It will not suit all children with cerebral palsy. Some will benefit and some may see no benefit or their condition may even deteriorate. You should always discuss potential risks and side-effects with your child's neurosurgeon.
Permanent complications are rare, but risks include:
You may want to ask your child's medical advisors the following questions:
Since 1988, Selective Dorsal Rhizotomy (SDR) has been available through the orthopaedic team at the Robert Jones and Agnes Hunt Hospital in Oswestry. The technique practised here is via a multi-level approach.
Since 2011, some British paediatric neurosurgery centres have started offering SDR surgery through the single-level approach. Some cases have been NHS-funded, others self-funded through the NHS hospital treatment top-up scheme.
Until recently NHS England had withdrawn funding for SDR surgery whilst it examined its effectiveness. A final report is due in Autumn 2018. This will lead to a decision on future NHS funding for the procedure. It's thought that the Commissioning Through Evaluation scheme will fund centres to undertake SDR with selected children to gather detailed information about clinical outcomes.
If your child is attending a UK hospital, it will usually make an application for funding to the Primary Care Trust. NHS funding may be in full. If funding is granted in part or declined, the procedure may still go ahead but parents will have to find the funds.
UK costs will still be less than SDR in the USA and follow-up physiotherapy and monitoring of your child is easier.
Selection criteria for selective dorsal rhizotomy in children with spastic cerebral palsy, MacKeith Press
What's the Evidence? Selective Dorsal Rhizotomy published by Cerebra.
Research papers and clinical trials published on SDR.
Support 4 SDR
A group of parents whose children have undergone SDR who aim to improve clinical care around SDR.
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