Shine supports a community of over 15,000 members living with spina bifida and hydrocephalus, including 10,000 adults (25+).

• Deliver innovative support across your region to improve health, social, and emotional outcomes for members.
• Attend specialist clinics to engage with members and professionals.
• Provide information, advice, and guidance to our adult members and carers, including hard-to-reach communities.
• Support members to access benefits, services, and resources that promote financial stability, health, and independence.
• Refer members to Shine’s Health Team, internal specialists, or external agencies as appropriate.
• Develop age-specific groups and peer support networks to reduce isolation and encourage social interaction.
• Recruit and support Shine volunteers.
• Contribute to regional and national events (face-to-face and virtual) based on member needs and interests.
• Represent Shine at conferences, provide information, raise awareness among professionals, external organisations, and the public through presentations and training.
• Promote Shine membership to individuals with relevant conditions.
• Maintain accurate records using Shine’s CRM (Salesforce database).
• Collaborate with colleagues across services, fundraising, and marketing to identify opportunities for sustainability.
• Maintain an up-to-date directory of contacts and share relevant information internally.
• Undertake administrative tasks and other duties as required.

• Experience supporting adults living with disabilities or their carers.
• At least two years’ recent experience supporting and advising on one or more of the following:
  • Health and wellbeing
  • Benefits
  • Education and learning
  • Employment
  • Social skills and reducing isolation
  • Social care and housing
• Experience developing and delivering opportunities to support adults with disabilities towards outcomes that improve their day-to-day life.
• Event planning, advocacy, and multi-disciplinary working.
• Ability to develop and deliver professional presentations.
• Excellent verbal and written communication skills.
• Strong IT skills (Word, Excel, PowerPoint) and database experience.
• A non-judgemental approach to working with people.
• Ability to travel across designated areas.
• Demonstrate flexibility and willingness to work outside core hours when required.
• Ability to work from home and manage lone working effectively.
• Self-motivated, with strong initiative and ability to work independently and as part of a dispersed team.
• Full Enhanced DBS check, UK Right to Work and satisfactory references required.

Disclaimer: We will be interviewing for this role as suitable applications are received and may close this role before the closing date upon a successful candidate being appointed.