Helpline 0808 800 3333 or contact us
For disability information call free
0808 800 3333 or contact us
0808 800 3333
Anything else? Other ways to contact us
Every child is different. We don’t have all the answers. But there’s a lot of help and support available. Call us free on 0808 800 3333.
How do we tell family and friends?
What can professionals do for me?
Where can I get help?
What about school?
Where can I get help with the extra costs of disability?
What does it mean for me and my partner - our relationship?
What about my other children?
You may also find it helpful to talk to other parents. Find out if there’s a Face 2 Face group in your area.
Many children don’t get an official diagnosis. You may hear people talk about “a delay in development” or refer to medical terms. Professionals can’t always predict how your child will develop. This can be frustrating and upsetting.
Remember: all parents like to show off their child’s achievements. And all children achieve different things at different rates.
At times of stress, it’s important you look after yourself and ask for help when you need it.
Get advice and tips, or share your experiences
My beautiful 20 month old daughter has just had a MRI brain scan which showed she has PVL and Quadriplegia Cerebral Palsy.
Hi I'm Lauren, I work for Genetic Alliance UK running the SWAN UK project. SWAN stands for Syndromes Without A Name.
Just a few more sleeps to go, and no doubt you and your family are excited for Christmas to finally begin!
Find out how @Scope is helping people to feel more confident about disability. Help us #EndTheAwkward http://bit.ly/2egoZQx