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If you have other children, they may be feeling confused too.
It’s important to talk to them about what you have been told.
Listen to them, help them explore their feelings and try to answer their questions. This isn't easy as you may have lots of your own. But children will understand more than you realise.
If your disabled child is in hospital a lot, it can be helpful to take your other children to see the ward and meet the professionals who are helping their brother or sister.
Sometimes brothers and sisters may feel left out if your disabled child is taking up a lot of your time. Try to ensure each child has some special time with you.
Sibs is the UK charity for siblings of disabled children and adults provides information, support and training to siblings, parents and professionals across the UK.
Barnardo's runs projects to support young carers.
Over the Wall runs camps for siblings of those affected by serious disorders.
This is from a mum in the Parenting Special Needs Magazine Facebook group:
Do you have sibblins with cerebral palsy? How do you feel about that? I feel quite alone and that nobody can understand me.
Find out how @Scope is helping people to feel more confident about disability. Help us #EndTheAwkward http://bit.ly/2egoZQx