Privacy policy

How we treat the information we gather

Contents

Who we are

Scope exists to make this country a place where disabled people have the same opportunities as everybody else. 

Our supporters are important to us, and we're committed to keeping your data safe, making it clear what information we collect from you, and how we use it.

This page, together with our terms of use and cookies policy, sets out how we use and protect your data.

Scope is registered with the Information Commissioner's Office under number Z8748114, is a registered charity under number 208231, and a registered company limited by guarantee under number 520866 (England and Wales).

You can change how we contact you at any time, simply by contacting Supporter Care by email at supportercare@scope.org.uk or calling us on 020 7619 7296.

As part of our commitment to you, we have appointed a Data Protection Officer, whose name is Harry Miller. You can contact Harry, either by writing to:

The Data Protection Officer,
Scope,
6 Market Road,
London, N7 9PW 

or emailing: dataprotection@scope.org.uk.

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What data we collect and how we use it

The type and quantity of data we collect and use depends on why you have provided it.

We will only collect, use and otherwise handle your personal data:

  • where you have consented to this for specified, explicit and legitimate purposes
  • where this is necessary to fulfil legal obligations that apply to us
  • where it is necessary for our legitimate interests relating to running our daily operations, as long as, in each case, these interests are in line with applicable law and your legal rights and freedoms.

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Supporters

If you support us, for example by signing up to an event, donating, signing up to Gift Aid, or signing up to a campaign, we will usually collect your name, contact details, and whether you would like to be contacted, and how we would do so. If appropriate, we may also ask to collect your date of birth, financial details, Gift Aid eligibility, reasons for support, information relating to health and disability, and responses to our campaigns.

We collect this data so we can keep you up to date with information and products you have requested, or may be interested in, and to ask for more support, in the way that you have chosen; to run our events; and to fulfil our legal responsibilities for financial and Gift Aid reporting.

We will keep your data only for as long as necessary. If you have kindly donated to us, we are required to keep this data for seven years. If you have not donated to us, we will only keep your data for three years. 

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Volunteers

If you volunteer with us, or enquire about our volunteering opportunities, we will usually collect your name, contact details, emergency contact details, bank details, contact preferences, ethnicity, gender, availability to volunteer, disability (including physical and mental conditions) and criminal convictions.

We collect this data so that we can contact you about volunteering opportunities that come up; so that we ensure the safety of our volunteers, staff and customers; can pay expenses; carry out our awards programme; and to help us anonymously measure our inclusion and accessibility across our volunteering programmes.

We will keep this data for two years after you stop volunteering for us.

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Gift in Wills

Some of our supporters choose to let us know that they plan to leave a gift in their Will to Scope to help us carry out our important work.

We will collect contact details and contact preferences of supporters who ask us for more information about how to leave a gift to Scope in their Will or who tell us that they are thinking about leaving a gift to the charity. We will use this data to keep in touch and send you other information and products that you are interested in. If you change your mind then we will only keep this data for three years.

If you tell us that you do intend to leave us a gift in your Will then we will collect contact details and contact preferences. We will use this data to keep in touch and send you other information and products that you have expressed an interest in. This data will be kept on file long-term, as hopefully it will be many years before your gift is realised.

To administer bequests, solicitors, executors and our probate agents Smee and Ford will provide us with details of the deceased, the corresponding executors, solicitors and where necessary other beneficiaries. This data will be kept by us and only shared with our legacy administrators Foot Anstey LLP for the purposes of executing the Will. The data will be kept on file indefinitely.

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Storytellers

Some of our supporters kindly tell us stories about their experiences to help us in our campaigns. 

We will record the details of the story, and contact details to enable us to get updated approval to use the story.

We will keep this data for three years after you give it to us, and will always contact you each time we wish to use it.

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Photography

Our supporters, volunteers and customers kindly let us use photography and images of them to help our campaigns and activity come to life. 

We keep these images stored in a secure location and will only use them with the subject’s permission.

We keep these images for three years after we have been given them, unless you ask otherwise.

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Research

Part of the work we do involves carrying out research. If you agree to take part, we will record responses to questions that you give us, and your personal details.

This data will be used to fulfil our research objectives, and may be shared for relevant projects. Your data will remain anonymous unless you consent to it being disclosed.

The data we collect will be kept for five years.

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Online Community

Scope offers an online community for disabled people, parents and carers to get disability advice and information, and to talk to people with similar experiences.

This service is anonymous and no personal data is stored.

Posts will be kept indefinitely.

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Helpline

We run a support and information helpline.

We record only the data needed to help your enquiry. This data is not shared in any way and will not be used to contact you about other services or offers from Scope unless you give us permission to do so.

We will keep this data for one whole financial year after you contact us.

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Services

Scope offer a wide range of information and advice services to disabled people, families of disabled children, and businesses.

We will collect your contact details and preferences, and any other data that is relevant to delivering the service to you.

This information will only be used for the purposes of the service and not shared with the rest of Scope unless you give us permission to do so.

We will keep the data for up to six years, in line with contracts and government regulations.

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Complaints

Should you wish to register a complaint we will collect your name, contact details and details about the complaint to enable us to respond, monitor and improve our organisation.

This data will be shared with any parts of Scope or any third parties who are involved in resolving the complaint, for example, agencies that we have partnered with.

We will hold this data for six years.

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Website

When someone visits scope.org.uk we use a third-party service, Google Analytics, to collect standard internet log information and details of visitor behaviour patterns. We do this to find out information, such as the number of visitors to the various parts of the site. 

If we want to collect personally identifiable information through our website, we will be up front about this. We will make it clear when we collect personal information and will explain what we intend to do with it. We will collect any questions, queries and feedback you leave. This will include your email address if you send us an email, your IP address, and which web browser (and version) you use. Information on how people use the site, through cookies and page tagging, helps us improve our website and our services. Find out more about our Cookie Policy.

We may also pass on your personal information to online advertising tools, including Facebook Custom audiences, Google AdWords Match and Google Analytics to carry out ‘remarketing activities’. These third-party vendors may use cookies to serve these ads based on your previous visits to our website.

We might also obtain your personal data through your use of social media such as Facebook, WhatsApp, Twitter or LinkedIn, depending on your settings or the privacy policies of these social media and messaging services. To change your settings on these services, please refer to their privacy notices, which will tell you how to do this.

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E-newsletter

We use a third-party provider, Mailchimp, to deliver our monthly e-newsletters. We collect statistics around email opening and clicks using industry standard technologies including clear gifs to help us monitor and improve our e-newsletter. For more information, please see Mailchimp’s privacy notice.

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Scope’s Blog

Scope’s blog is currently hosted on WordPress.com, which is run by Automattic Inc. By subscribing to the blog, your email and IP address will be collected so that you can be kept up to date with new blogs and to ensure that the house rules are adhered to.

For more information about how WordPress processes data, please see Automattic's privacy notice

Comments left on our blog are kept indefinitely.

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Suppression List

Should you not wish Scope to contact you in the future, we will hold your contact details on file. This will enable us to ensure that we comply to your wishes.

We will hold this data indefinitely. Should you wish to engage with Scope again then please get in touch with our Supporter Care team supportercare@scope.org.uk.

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Children’s data

Although children under 16 can fundraise with the consent and support of a guardian, we do not record their contact information. Instead, their parent or guardian’s details are recorded (with their contact preferences). Individuals over 16 can be recorded but still require a guardian as reference (for school contacts this can be a teacher).

For our services, the service is always provided to the family or parent. Data is supplied to us where we have a legal basis to collect and retain that data as per the contracts, or included in the case notes provided, for example by paediatricians or in independent support where there is a young person involved. This information is not shared with anyone not connected to providing the service.

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Phone Recordings

Scope records some calls to help train our staff. You will always be informed of this at the start of any call that will be recorded.

The records will be deleted after 30 days.

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Sharing your data

Unless we are required to share your data for legal or regulatory reasons, to help with a complaint, or to administer a Gift in Will, we will never share your data with other organisations.

We do use third-party organisations to help us collect donations such as JustGiving and Virgin Money Giving, and to help us fulfil our marketing. Where we use external companies to collect or process data on our behalf, we carry out comprehensive checks on these companies, and put in place contracts to control how they manage the data they may collect or have access to.

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Keeping your data safe and up to date

At Scope we ensure that the most appropriate technical controls are in place to keep your data safely. Access to your data is regularly reviewed and only accessible to the relevant trained staff, volunteers and contractors.

Where we use external companies to collect or process data on our behalf, we carry out comprehensive checks, and put in place contracts to control how they manage the data they may collect or have access to.

Your data will be hosted on servers located in the UK, which will not be transferred out of the European Union, or in the case of our blog and Mailchimp, the data will be stored in the US.

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Third-party Data and Profiling

To help us ensure that we only hold accurate and up to date data, we regularly use third-party data sources to clean our data. These data sources include Experian and the Post Office.

We carefully manage the communications we send you to ensure that we are contacting you in the most appropriate way and that we are not sending you unwanted communications. To do this, we may combine the information that we collect about you and analyse what we know about your interests, preferences and level of potential engagement or donation. We may use data that we have not directly collected from you, such as information from Companies House, Media, and Dun and Bradstreet. We may also use statistical analysis on this data to understand the likelihood that you will be interested in or responsive to a campaign or message. 

You can opt out of your data being combined and analysed for marketing purposes by contacting our Supporter Care Team. However, this may mean that you stop receiving marketing communications from us more generally.

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Your rights

We will only collect the data that we need to carry out the purposes you have contacted us for, or given us permission to use it for. 

To enable us to carry out the purposes you have contacted us for, there will be occasions when we will make some data collection mandatory i.e. your name and address to claim gift aid, or your email address to access our services. If you don’t provide this data, we cannot carry out the purposes you have contacted us for.

We will always tell you why these fields are mandatory.

At any time that you wish you can: 

  1. gain access to your personal information,
  2. object to the processing of your personal information,
  3. object to the use of automated decision-making and profiling,
  4. restrict the processing of your personal information,
  5. ask for a copy of your personal data (known as data portability),
  6. rectify or correct your personal information, and 
  7. have your personal information removed (known as Erasure or the ‘right to be forgotten’).

Where you have provided consent to be contacted or to receive a service, you will be entitled to withdraw that consent at any time.

If you are at any point unhappy with the way that we handled your personal data, you can make a complaint to the Information Commissioner’s Office.

To make changes to how we contact you, please contact Supporter Care at supportercare@scope.org.uk.

For all other requests please contact the Data Protection Officer at:

The Data Protection Officer
Scope,
6 Market Road,
N7 9PW
London
or by emailing dataprotection@scope.org.uk

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Changes to this Policy

We may make changes to this Privacy Policy from time to time. If we make any changes in the way we use your personal information we will make this clear on the Scope Website or by contacting you directly.

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