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Any advice is greafully revived!

Hello again everyone, thanks again for all your help and advice regarding walking aids I recently managed to acquire one from a family member but not yet had chance to try it out long distance. I’ve ...

Profile picture of the author Discussion in What benefits am I entitled to? - 14 Sep 2021

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baclofen

hi, I'm 26 and have diplegia. My DR has prescribed me baclofen to help with the increased tightness I have been experiencing recently. It's not a drug I have ever come across before and was just ...

Profile picture of the author Discussion in Disabled people - 11 Dec 2012

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Baclofen

I work as an independent advocate and my role is to share the wishes and views of the young people I work with. I also gain information on their behalf. I am currently advocating on behalf of a young ...

Profile picture of the author Discussion in Parents and carers - 23 Feb 2011

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Baclofen

Hi there! I've recently started using baclofen to control the pain associated with my CP (spastic right-sided hemi) but I am gradually increasing my dose. I have been noticing it messes with my ...

Profile picture of the author Discussion in Cerebral Palsy - 8 Oct 2015

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Hi, my 8 year old son has HSP

My 8 year old son has HSP. His walking is very limited and mainly uses wheelchair. He takes max dose oral baclofen. He’s been offered an ITB pump to help reduce spasticity and make everything a bit ...

Profile picture of the author Discussion in Parents, carers and disabled parents - 7 Jun 2021

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How can I keep my energy levels up? Any recommendations for walking aids with a seat?

Me again, hey all. Loving using this forum now, so greatful for all your previous advice. As I’ve mentioned in previous posts- I suffer with cerebral palsy hemiplegia to be exact. My CP has recently ...

Profile picture of the author Discussion in Cerebral Palsy - 6 Sep 2021

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Baclofen Do you have experience of alternatives please?

Hi If anyone can refer me to a previous discussion please do or suggest where to try, that would be great. (The original aims of this charity covered my Uncle's position). Thanks I noticed my ...

Profile picture of the author Discussion in Cerebral Palsy - 31 Dec 2020

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baclofen pump

jack has dystonic type cp with generalised stiffnes. He has good head and core control. Jack tries so hard to use his hands but finds it so hard due to stiffness. He is on oral baclofen just wondering ...

Profile picture of the author Discussion in Parents and carers - 10 May 2012

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Baclofen withdrawal. Please help!

I took Baclofen 25 mg 2 times a day. I stopped taking it for 2 days, and got the worse withdrawal symptoms: vision problems, unsteady, fever, Dizziness, Anxiety, Hyperthermia, Depersonalization, ...

Profile picture of the author Discussion in Neurological conditions - 28 Sep 2019

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Baclofen pump for walking?

Hi everybody, I'm twenty-seven years old and I have spastic diplegic CP. I also fell and broke my right tibia two years ago, which has left me with a pretty severe right knee contracture. Doctors ...

Profile picture of the author Discussion in Disabled people - 14 Jul 2012

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