Hi guys, My names Elliot and I'm raising money to fund research into repairing the types of brain damage that lead to cerebral palsy. My focus will be on periventricular Leukomalacia as it's a major ...
Discussion in Cerebral Palsy - 2 Sep 2018
Hi. My son has just been diagnosed with PVL. I have been told that PVL could be classed as cerebral palsy, so have assumed this is the case. Have I made the right assumption?!? Thanks!
Discussion in Cerebral Palsy - 25 Jan 2015
Hi all, I'm Jodie, I'm 30 years old and a Mum of two. A boy and a girl. My girl is 13 weeks old and neurotypical. My boy is 2 years and 4 months, he has been diagnosed with Pereventricular ...
Discussion in Parents, carers and disabled parents - 28 Sep 2021
Hi all, I'm Jodie, I'm 30 years old and a Mum of two. A boy and a girl. My girl is 13 weeks old and neurotypical. My boy is 2 years and 4 months, he has been diagnosed with Pereventricular ...
Discussion in Cerebral Palsy - 28 Sep 2021
Hi. My son has just been diagnosed with PVL. I have been told that PVL could be classed as cerebral palsy, so have assumed this is the case. Have I made the right assumption?!? Thanks!
Discussion in Parents and carers - 25 Jan 2015
Morning, I have 3.5 year old twin boys, 1 of which has been 'diagnosed' with very mild pvl spastic diplegia cp. He had an MRI at the beginning of September and the consultant rang me to give me the ...
Discussion in Parents and carers - 6 Oct 2019
Hi there, New to SCOPE. I have a little boy who was diagnosed with Cystic Periventricular Leukomalacia at 22 months (now 26 Months). This brain injury was caused by a collapsed lung at 3 weeks old due ...
Discussion in PIP, DLA and AA - 8 Jan 2019
My wife and I had quite some difficulty conceiving, and eventually went down the IVF route. When we found out we were to have twins, we were ecstatic. Unfortunately, about 5 months into the ...
Discussion in Parents and carers - 30 Mar 2010
Hi, So I am new to this and haven’t really posted on any forums before but I am struggling to find the help I need. Summer if 2018 I went in to premature labour at 26 weeks. I have had “spotting” for ...
Discussion in Cerebral palsy - 26 May 2022
Hi, I am a mum of 3 teenage boys. My middle son had a birth injury has a diagnoses of dyspraxia, dyslexia, hyper mobile joints, mild ASD, sensory processing disorder, visual perception problems, mild ...
Discussion in Ask a parenting advisor - This category is now closed - 5 Mar 2018