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Fundraising for Cerebral Palsy cure

Hi guys, My names Elliot and I'm raising money to fund research into repairing the types of brain damage that lead to cerebral palsy. My focus will be on periventricular Leukomalacia as it's a major ...

Profile picture of the author Discussion in Cerebral Palsy - 2 Sep 2018

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PVL

Hi. My son has just been diagnosed with PVL. I have been told that PVL could be classed as cerebral palsy, so have assumed this is the case. Have I made the right assumption?!? Thanks!

Profile picture of the author Discussion in Cerebral Palsy - 25 Jan 2015

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PVL

Hi. My son has just been diagnosed with PVL. I have been told that PVL could be classed as cerebral palsy, so have assumed this is the case. Have I made the right assumption?!? Thanks!

Profile picture of the author Discussion in Parents and carers - 25 Jan 2015

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Recent 'diagnosis' of pvl spastic diplegia cerebal palsy

Morning, I have 3.5 year old twin boys, 1 of which has been 'diagnosed' with very mild pvl spastic diplegia cp. He had an MRI at the beginning of September and the consultant rang me to give me the ...

Profile picture of the author Discussion in Parents and carers - 6 Oct 2019

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DLA for 2 year old son - Can we claim?

Hi there, New to SCOPE. I have a little boy who was diagnosed with Cystic Periventricular Leukomalacia at 22 months (now 26 Months). This brain injury was caused by a collapsed lung at 3 weeks old due ...

Profile picture of the author Discussion in PIP, DLA and AA - 8 Jan 2019

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We Are Quite Desperate; We Don’t Know What To Think Or Feel

My wife and I had quite some difficulty conceiving, and eventually went down the IVF route. When we found out we were to have twins, we were ecstatic. Unfortunately, about 5 months into the ...

Profile picture of the author Discussion in Parents and carers - 30 Mar 2010

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Newish diagnosis - son not coping too well.

Hi, I am a mum of 3 teenage boys. My middle son had a birth injury has a diagnoses of dyspraxia, dyslexia, hyper mobile joints, mild ASD, sensory processing disorder, visual perception problems, mild ...

Profile picture of the author Discussion in Ask a parenting advisor - This category is now closed - 5 Mar 2018

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Baby Daughter with PVL

Hi, my 6 month old Daughter was born 9 weeks premature, at birth she was diagnosed with PVL in her brain. Since then she has had a rough start... severe reflux, milk protein allergies, seizures... We ...

Profile picture of the author Discussion in Parents and carers - 27 Mar 2017

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New PVL dignosis

My Grandaughter was born at 30 weeks and yesterday at 35 weeks was diagnosed with PVL. The family is of course devastated, especially my daughter and her husband. They are in the early grieving stage, ...

Profile picture of the author Discussion in Welcomes and introductions - 7 Jul 2018

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recent diagnosis and behaviour

My son (3 and a half) has been recently diagnosed with bilateral preventricular leukomalacia and this has caused him to have cerable palsy, I am struggling to come to terms with this, yes he can ...

Profile picture of the author Discussion in Parents and carers - 20 Nov 2014

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