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Looking for parents of children with PVL and CP

Hi all, I'm Jodie, I'm 30 years old and a Mum of two. A boy and a girl. My girl is 13 weeks old and neurotypical. My boy is 2 years and 4 months, he has been diagnosed with Pereventricular ...

Profile picture of the author Discussion in Parents, carers and disabled parents - 28 Sep 2021

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Looking for parents of children with CP and PVL

Hi all, I'm Jodie, I'm 30 years old and a Mum of two. A boy and a girl. My girl is 13 weeks old and neurotypical. My boy is 2 years and 4 months, he has been diagnosed with Pereventricular ...

Profile picture of the author Discussion in Cerebral Palsy - 28 Sep 2021

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Fundraising for Cerebral Palsy cure

Hi guys, My names Elliot and I'm raising money to fund research into repairing the types of brain damage that lead to cerebral palsy. My focus will be on periventricular Leukomalacia as it's a major ...

Profile picture of the author Discussion in Cerebral Palsy - 2 Sep 2018

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PVL

Hi. My son has just been diagnosed with PVL. I have been told that PVL could be classed as cerebral palsy, so have assumed this is the case. Have I made the right assumption?!? Thanks!

Profile picture of the author Discussion in Cerebral Palsy - 25 Jan 2015

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PVL

Hi. My son has just been diagnosed with PVL. I have been told that PVL could be classed as cerebral palsy, so have assumed this is the case. Have I made the right assumption?!? Thanks!

Profile picture of the author Discussion in Parents and carers - 25 Jan 2015

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Recent 'diagnosis' of pvl spastic diplegia cerebal palsy

Morning, I have 3.5 year old twin boys, 1 of which has been 'diagnosed' with very mild pvl spastic diplegia cp. He had an MRI at the beginning of September and the consultant rang me to give me the ...

Profile picture of the author Discussion in Parents and carers - 6 Oct 2019

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Daughter aged 3.5 years

Hi, So I am new to this and haven’t really posted on any forums before but I am struggling to find the help I need. Summer if 2018 I went in to premature labour at 26 weeks. I have had “spotting” for ...

Profile picture of the author Discussion in Cerebral palsy - 26 May 2022

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DLA for 2 year old son - Can we claim?

Hi there, New to SCOPE. I have a little boy who was diagnosed with Cystic Periventricular Leukomalacia at 22 months (now 26 Months). This brain injury was caused by a collapsed lung at 3 weeks old due ...

Profile picture of the author Discussion in PIP, DLA and AA - 8 Jan 2019

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We Are Quite Desperate; We Don’t Know What To Think Or Feel

My wife and I had quite some difficulty conceiving, and eventually went down the IVF route. When we found out we were to have twins, we were ecstatic. Unfortunately, about 5 months into the ...

Profile picture of the author Discussion in Parents and carers - 30 Mar 2010

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Newish diagnosis - son not coping too well.

Hi, I am a mum of 3 teenage boys. My middle son had a birth injury has a diagnoses of dyspraxia, dyslexia, hyper mobile joints, mild ASD, sensory processing disorder, visual perception problems, mild ...

Profile picture of the author Discussion in Ask a parenting advisor - This category is now closed - 5 Mar 2018

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