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Did anyone else feel down about their child's diagnosis? How did you deal with it?

Hey did anyone feel down about their child's diagnosis. How did you deal with it.

Profile picture of the author Discussion in Parents, carers and disabled parents - 11 Oct 2021

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DLA with no diagnosis yet?

Hello I have been advised by my health vistor to apply for DLA for my son who is 2 and a half we are awaiting on referral to community pediatricians as he has traits of Autism, has anyone been through ...

Profile picture of the author Discussion in PIP, DLA and AA - 5 Oct 2021

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New diagnosis

My son has recently been diagnosed with hemiplegic cerebral palsy and we're not being given any help or advice from doctors. He has a fear of loud noise and I wondered if this is just a phobia or if ...

Profile picture of the author Discussion in Cerebral Palsy - 26 Jun 2021

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Twin 10 year old girls going through diagnosis. What should we expect at neurology appointment?

Hi everyone, just after some help and and advice. I am mum to 10 year old twin girls who are just being diagnosed with cerebral palsy . We haven’t been given the official diagnosis yet as they have ...

Profile picture of the author Discussion in Cerebral Palsy - 9 Oct 2021

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I've been awarded standard daily living. Unsure about MR. Does diagnosis make a difference?

I've just been awarded standard daily living. I got 11 points so a part of me considered going for a MR but I'm not sure if it would achieve anything. Every area where I've been given points it ...

Profile picture of the author Discussion in PIP, DLA and AA - 23 Sep 2021

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3 years no diagnosis, struggling with symptoms

I've been suffering disabling symptoms which have gone undiagnosed for almost 3 years. I was 19 years old when I was struck by extreme constant nausea, upper abdominal ache, approx 2 inches above ...

Profile picture of the author Discussion in Undiagnosed and rare conditions - 14 Sep 2021

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I need help finding a diagnosis. Tumor + POTS

Hi my name is Calli. I have an undiagnosed illness. My junior year of high school I took accutane which led to stomach issues and severe stomach pain 2-3 inches above my belly button. I was told it ...

Profile picture of the author Discussion in Undiagnosed and rare conditions - 15 Sep 2021

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Hi, my name is juneann! When I informed PIP of my new diagnosis they stopped my payment

hello all,im june i have COPD, asthma, and all over pain in joints and muscles.i was in receipt of pip till june 2019 when i was diagnosed with early onset diabetes.when i informed pip about my new ...

Profile picture of the author Discussion in PIP, DLA and AA - 15 Sep 2021

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I don't want the cure, diagnosis would be more than enough

I have lost my hope for recovery quite a while ago, finding out the name of the condition/disease that has ruined my life would be satisfactionary enough. There have to be some people out there in ...

Profile picture of the author Discussion in Undiagnosed and rare conditions - 6 Sep 2021

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ADHD diagnosis..Do you work…how do you manage?

With a recent diagnosis of ADHD Inattentive type my adult daughter really wants a part time job. The medication prescribed doesn’t help and I’m worried what she will be able to do work wise in the ...

Profile picture of the author Discussion in Rare, invisible, and undiagnosed conditions - 25 Jun 2021

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