Usher Syndrome
Hello. Was wondering if anyone else has usher syndrome ?
Discussion in Talk about your impairment - 16 Aug 2021
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PIP and ESA
Hi there, I have just joined ans wanted to get some advise. I was born with ushers syndrome this is a genetic disorder which leads fo progressive loss of hearing and vision and I get older. I am 47 ...
Discussion in PIP, DLA, and AA - 27 Sep 2023
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What’s your experience of growing older as a Black British person with lifelong disability?
University Ref: FHMS 22-23 214 EGA V2 26/07/23 WE WOULD LOVE TO HEAR FROM YOU What’s your experience of growing older as a Black British person with lifelong ...
Discussion in Cerebral palsy - 11 Sep 2023
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Hi, my name is SoniaJaneFazz!
Hi all. I'm Sonia, aged 43 and I have Usher Syndrome Type 3 ie Blind and partially deaf and many other health issues.
Discussion in Start here and say hello! - 27 Jan 2018
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Isolated: waiting list for a guide dog
Hey I am new to here I have usher syndrome and am registered SSI/blind ( due to retinitis pigmentosa) and on waiting list for a guide dog I find it so hard to make friends , miss going out for ...
Discussion in Disability rights and campaigning - 8 Jan 2020
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Oh whats next?! PIP after sorted UC...
They had my house assessment for the first PIP (changed from DLA to PIP) in 2019. Five years later, I completed the second PIP review form last year 2024, with support from my deaf centre who fill ...
Discussion in PIP, DLA, ADP and AA - 2 Mar 2025
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Capita: why 2nd assessment?
The capita went to my houss for my 1st assessment with an interpreter (changed from DLA to PIP in 2019). Five years later, my PIP review form last year 2024, with support from my deaf centre who fill ...
Discussion in PIP, DLA, ADP and AA - 2 Mar 2025
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Severely sight impaired/deaf waiting on claim, some questions.
Hello, Firstly thanks for all the contributors on here, I've absorbed a lot of useful info and your time is appreciated. Long story short: I have usher syndrome so I am losing my eyesight (I am now ...
Discussion in PIP, DLA, and AA - 17 Jan 2022
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Hello
Hello, my name is malc66. I have Usher Syndrome and have been registered blind for quite a few years.
Discussion in Start here and say hello! - 16 Aug 2021
Scope community
What’s your experience of growing older as a Black British person with a lifelong disability?
Adult Recruitment Poster University Ref: FHMS 22-23 214 EGA V5 14/05/24 What’s your experience of growing older as a Black British person with a lifelong disability? Are you 30 years ...
Discussion in Cerebral Palsy Network - 5 Jun 2024
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