PVL
Hi. My son has just been diagnosed with PVL. I have been told that PVL could be classed as cerebral palsy, so have assumed this is the case. Have I made the right assumption?!? Thanks!
Discussion in Cerebral palsy - 25 Jan 2015
Scope community
Cookie preferences
We use cookies on the Scope website to show us how many people our content is reaching.
It means we can:
- See what content is most useful to people
- Target more help where it’s needed
- Show relevant advertisements for our own services, no-one else’s
It also means we can work more closely with partners in government, local councils and other public bodies, targeting support where it’s needed most and offering a better range of services.
It’s your choice whether to allow them or not, but you’re helping us do more if you opt in. Thank you.
Manage my cookies
Essential Cookies
Always Active
These are necessary for our website to work and are always on. They help with remembering privacy settings, but do not store any information that identifies you.
If you choose to block these in your browser, some parts of our website will not work.
Functional Cookies
Functional cookies improve your experience using our website with different features. For example, interactive maps and embedded videos. These cookies may be set by us or by our service providers.
You can switch these off, but this may stop some or all these features from working correctly.
Analytics Cookies
Analytics cookies allow us to measure and improve the performance of our website.
They collect information about:
- how you use our website. For example, pages you visited and links you followed. This helps us to make design decisions to improve your experience
- how you arrived at our website. For example, sites, adverts and search engines you have come from. We use this to understand the effectiveness of our marketing activity
They also allow us to test different design versions to see which work best for customers like you. These cookies can be set by us, or service providers we use.
Switching these cookies off will stop us seeing this data. We will not be able to monitor and improve your website experience.
Targeting Cookies
Targeting cookies are used to display appropriate advertising to you on our website and others, including social media.
These cookies collect information about your browsing habits, such as whether you donated or signed up to an event. They do not collect personal data.
These cookies help us:
- make our adverts more effective and cost-efficient
- find other people with similar interests to yours
- allow you to share social media content with your network
We do this using carefully selected third party suppliers.
If you switch these cookies off, the adverts you see will be less targeted. But you may still see our adverts on other websites.
www.scope.org.uk
Name
AI_buffer
Host
www.scope.org.uk
Duration
Session
Type
Third-party
Category
Essential Cookies
Description
Cookies set by Microsoft Application Insights. This allows us to monitor the health and status of the server and website.
www.scope.org.uk
Name
AI_sentBuffer
Host
www.scope.org.uk
Duration
Session
Type
Third-party
Category
Essential Cookies
Description
Cookies set by Microsoft Application Insights. This allows us to monitor the health and status of the server and website.
.scope.org.uk
Name
ARRAffinitySameSite
Host
.scope.org.uk
Duration
Session
Type
Third-party
Category
Essential Cookies
Description
Used to distribute website traffic to several servers, helping to reduce response times.
www.scope.org.uk
Name
ASP.NET_SessionId
Host
www.scope.org.uk
Duration
.
Type
First-party
Category
Essential Cookies
Description
Our site uses Microsoft's .NET framework. This cookie is used by the server, to maintain an anonymized user session. This cookie expires at the end of a browsing session. This is determined by your browser's configuration.
www.scope.org.uk
Name
scope-accept
Host
www.scope.org.uk
Duration
1 Year
Type
First-party
Category
Essential Cookies
Description
Used to track if cookie banner has been interacted with
www.scope.org.uk
Name
scope-cookies
Host
www.scope.org.uk
Duration
1 year
Type
First-party
Category
Essential Cookies
Description
Used to determine which cookies the user has accepted
www.scope.org.uk
Name
SERVERID
Host
www.scope.org.uk
Duration
10 minutes
Type
Third-party
Category
Essential Cookies
Description
Usually used for load balancing. Identifies the server that delivered the last page to the browser. Associated with the HAProxy Load Balancer software.
.scope.org.uk
Name
X-AB
Host
.scope.org.uk
Duration
Type
Third-party
Category
Essential Cookies
Description
This cookie is used by the website’s operator in context with multi-variate testing. This is a tool used to combine or change content on the website. This allows the website to find the best variation/edition of the site.
www.scope.org.uk
Name
__RequestVerificationToken
Host
www.scope.org.uk
Duration
Session
Type
Third-party
Category
Essential Cookies
Description
This is an anti-forgery cookie set by web applications built using ASP.NET MVC technologies. It is designed to stop unauthorised posting of content to a website, known as Cross-Site Request Forgery. It holds no information about the user and is destroyed on closing the browser.
.www.scope.org.uk
Name
__stripe_mid
Host
.www.scope.org.uk
Duration
Session
Type
Third-party
Category
Essential Cookies
Description
This cookie is necessary for making credit card transaction s on the website. The service is provided by Stripe.com which allows online transactions without storing any credit card in formation.
.www.scope.org.uk
Name
__stripe_sid
Host
.www.scope.org.uk
Duration
Type
Third-party
Category
Essential Cookies
Description
Associated with Calendly, a Meeting Scheduler that some websites use. This cookie allows the meeting scheduler to function within the website.
.scope.org.uk
Name
__tlbcpv
Host
.scope.org.uk
Duration
Type
Third-party
Category
Essential Cookies
Description
Used to record how many people view the consent banner.
.scope.org.uk
Name
eud
Host
.scope.org.uk
Duration
Persistent for 13 months
Type
Third-party
Category
Functional Cookies
Description
This cookie contains partner user IDs and last successful cookie match time with partners.
.scope.org.uk
Name
euds
Host
.scope.org.uk
Duration
Type
Third-party
Category
Functional Cookies
Description
A session cookie of the eud cookie
.scope.org.uk
Name
ARRAffinity
Host
.scope.org.uk
Duration
Session
Type
Third-party
Category
Functional Cookies
Description
Used for load balancing on websites running on the Windows Azure cloud platform.
.scope.org.uk
Name
gex_id
Host
.scope.org.uk
Duration
Session
Type
First-party
Category
Functional Cookies
Description
Allows Google Experience Editor cookies to persist across subdomains.
www.scope.org.uk
Name
ai_session
Host
www.scope.org.uk
Duration
1 day
Type
Third-party
Category
Functional Cookies
Description
Monitors the performance of the iPerceptions portal of applications running on Azure.
www.scope.org.uk
Name
ai_user
Host
www.scope.org.uk
Duration
1 year
Type
Third-party
Category
Functional Cookies
Description
This cookie collects telemetry information and statistical usage data for the Microsoft Application Insights software. It is able to recognize returning visitors by storing unique identifiers.
.scope.org.uk
Name
___utmvxxxxxxxxxxxxxx
Host
.scope.org.uk
Duration
a few seconds
Type
Third-party
Category
Functional Cookies
Description
___utmv
Bounce
Name
Bounce
Host
Bounce
Duration
Type
Category
Analytics Cookies
Description
www.scope.org.uk
Name
SC_ANALYTICS_GLOBAL_COOKIE
Host
www.scope.org.uk
Duration
10 years
Type
Third-party
Category
Analytics Cookies
Description
This cookie is associated with the Sitecore Content Management System. It is used for web analytics to identify repeat visitors.
collect
Name
#collect
Host
collect
Duration
Type
Category
Analytics Cookies
Description
.scope.org.uk
Name
_gat_UA-10500881-1
Host
.scope.org.uk
Duration
1 minute
Type
Third-party
Category
Analytics Cookies
Description
This is a pattern type cookie set by Google Analytics. The pattern element on the name contains the unique identifier of the account or website it relates to. It is a variation of the _gat cookie which is used to limit the amount of data recorded by Google on high traffic volume websites.
.scope.org.uk
Name
g.pixel
Host
.scope.org.uk
Duration
Type
Third-party
Category
Analytics Cookies
Description
.c.clarity.ms
Name
MR
Host
.c.clarity.ms
Duration
Persistent
Type
Third-party
Category
Analytics Cookies
Description
Microsoft MSN cookie. Used to measure the use of the website for internal analytics.
.scope.org.uk
Name
pagevisit
Host
.scope.org.uk
Duration
Type
Category
Analytics Cookies
Description
.scope.org.uk
Name
partner
Host
.scope.org.uk
Duration
Type
Category
Analytics Cookies
Description
.scope.org.uk
Name
tag
Host
.scope.org.uk
Duration
Type
Category
Analytics Cookies
Description
.scope.org.uk
Name
_ga
Host
.scope.org.uk
Duration
2 years
Type
Third-party
Category
Analytics Cookies
Description
This cookie is associated with Google Universal Analytics. This cookie is used to distinguish different users by assigning a randomly generated number as an identifier. It is included in each page request for a site and used to calculate visitors, sessions and campaign data for the sites' analytics reports. By default it is set to expire after 2 years, although this is customisable by website owners.
.scope.org.uk
Name
_hjAbsoluteSessionInProgress
Host
.scope.org.uk
Duration
Type
Third-party
Category
Analytics Cookies
Description
The cookie is set so Hotjar can track the beginning of the user's journey for a total session count. It does not contain any identifiable information. Hotjar is used to improve customer experience on our website.
.scope.org.uk
Name
_hjIncludedInSessionSample
Host
.scope.org.uk
Duration
Type
Third-party
Category
Analytics Cookies
Description
This cookie is set to let Hotjar know whether that visitor is included in the data sampling defined by our site's daily session limit. Hotjar is used to improve customer experience on our website.
.scope.org.uk
Name
_gid
Host
.scope.org.uk
Duration
1 day
Type
First-party
Category
Analytics Cookies
Description
This cookie is associated with Google Universal Analytics. This appears to be a new cookie and as of Spring 2017 no information is available from Google. It appears to store and update a unique value for each page visited.
.scope.org.uk
Name
gex_id
Host
.scope.org.uk
Duration
Session
Type
Third-party
Category
Analytics Cookies
Description
This cookie is owned by Google and is used to provide "Analytics Services".
.scope.org.uk
Name
_hjIncludedInPageviewSample
Host
.scope.org.uk
Duration
a few seconds
Type
Third-party
Category
Analytics Cookies
Description
This is a Hotjar performance analysis cookie. This cookie enables Hotjar to mark a user as being included in an anonymous sample group. Hotjar is used to improve customer experience on our website.
.scope.org.uk
Name
anj
Host
.scope.org.uk
Duration
3 months
Type
Third-party
Category
Targeting Cookies
Description
This cookie contains data denoting whether a cookie ID is synced with an AppNexus partner.
audience
Name
audience
Host
audience
Duration
28 days
Type
Category
Targeting Cookies
Description
Sync audience data between buyers and sellers.
www.clarity.ms
Name
CMID
Host
www.clarity.ms
Duration
1 year
Type
Third-party
Category
Targeting Cookies
Description
This cookie is used for advertising. It tracks the products users were looking at.
.scope.org.uk
Name
CMPRO
Host
.scope.org.uk
Duration
3 months
Type
Third-party
Category
Targeting Cookies
Description
These cookies are linked to advertising and tracking the products users were looking at.
.scope.org.uk
Name
CMPS
Host
.scope.org.uk
Duration
3 months
Type
Third-party
Category
Targeting Cookies
Description
These cookies are linked to advertising and tracking the products users were looking at.
.scope.org.uk
Name
demdex
Host
.scope.org.uk
Duration
6 months
Type
Third-party
Category
Targeting Cookies
Description
This cookie helps Adobe Audience Manger perform basic functions such as visitor identification, ID synchronisation, segmentation, modelling, reporting and so on.
.scope.org.uk
Name
dpm
Host
.scope.org.uk
Duration
6 months
Type
Third-party
Category
Targeting Cookies
Description
Adobe Audience Manager - data management platform uses this cookie to record information around synchronisation of IDs.
.clarity.ms
Name
MUID
Host
.clarity.ms
Duration
1 year
Type
Third-party
Category
Targeting Cookies
Description
This cookie is widely used my Microsoft as a unique user identifier. It can be set by embedded Microsoft scripts. Widely believed to sync across many different Microsoft domains, allowing user tracking.
.bing.com
Name
MUID
Host
.bing.com
Duration
1 year
Type
Third-party
Category
Targeting Cookies
Description
This cookie is widely used my Microsoft as a unique user identifier. It can be set by embedded Microsoft scripts. Widely believed to sync across many different Microsoft domains, allowing user tracking.
.scope.org.uk
Name
pxrc
Host
.scope.org.uk
Duration
2 months
Type
Third-party
Category
Targeting Cookies
Description
This cookie registers non-personal data on the visitor. The information is used to optimise advertisement relevance.
tuuid
Name
tuuid
Host
tuuid
Duration
1 year
Type
Category
Targeting Cookies
Description
This cookie is mainly set by bidswitch.net to make advertising messages more appropriate to the website visitor.
tuuid_lu
Name
tuuid_lu
Host
tuuid_lu
Duration
1 year
Type
Category
Targeting Cookies
Description
This cookie contains a unique visitor ID. This unique ID allows BidSwitch.com to track the visitor across multiple websites. BidSwitch can use this to optimise the relevance of adverts and make sure that visitors do not see the same ads multiple times.
.scope.org.uk
Name
__adal_ca
Host
.scope.org.uk
Duration
Persistent
Type
Third-party
Category
Targeting Cookies
Description
Store which advertising campaign drove a user to visit
.scope.org.uk
Name
__adal_cw
Host
.scope.org.uk
Duration
Persistent
Type
Third-party
Category
Targeting Cookies
Description
Tie back conversion events to earlier visits
.scope.org.uk
Name
__adal_id
Host
.scope.org.uk
Duration
Persistent
Type
Third-party
Category
Targeting Cookies
Description
Uniquely identify a device
.scope.org.uk
Name
_gcl_au
Host
.scope.org.uk
Duration
3 months
Type
Third-party
Category
Targeting Cookies
Description
Used by Google AdSense for experimenting with advertisement efficiency across websites using their services
.scope.org.uk
Name
_uetsid
Host
.scope.org.uk
Duration
1 day
Type
Third-party
Category
Targeting Cookies
Description
This cookie is used by Bing to determine what ads should be shown that may be appropriate to the customer using the site.
.scope.org.uk
Name
_uetvid
Host
.scope.org.uk
Duration
1 year
Type
Third-party
Category
Targeting Cookies
Description
This is a cookie utilised by Microsoft Bing Ads and is a tracking cookie. It allows us to engage with a user that has previously visited our website.
.scope.org.uk
Name
everest_g_v2
Host
.scope.org.uk
Duration
1 year
Type
Third-party
Category
Targeting Cookies
Description
This cookie carries out information about how the end user uses the website and any advertising that the end user may have seen before visiting the said website.
.scope.org.uk
Name
fr
Host
.scope.org.uk
Duration
90 days
Type
Third-party
Category
Targeting Cookies
Description
Contains browser and user unique ID combination, used for targeted advertising.
.scope.org.uk
Name
recordID
Host
.scope.org.uk
Duration
1 year
Type
Third-party
Category
Targeting Cookies
Description
This cookie name is associated with services from UK email marketing company DotDigital. Their software placed on a website enables the owners to track when email campaign recipients land on the target website, which enables monitoring of the effectiveness of a campaign. This cookie is a unique user identifier, enabling persistent linking of behaviour on the site to a particular user and email campaign response.
.doubleclick.net
Name
IDE
Host
.doubleclick.net
Duration
1 year
Type
Third-party
Category
Targeting Cookies
Description
This cookie is set by DoubleClick and carries out information about how the end user uses the website and any advertising that the end user may have seen before visiting the said website.
.twitter.com
Name
personalisation_id
Host
.twitter.com
Duration
2 years
Type
Third-party
Category
Targeting Cookies
Description
This cookie carries out information about how the end user uses the website and any advertising that the end user may have seen before visiting the said website.
.rlcdn.com
Name
.rlcdn.com
Host
.rlcdn.com
Duration
1 year
Type
Category
Targeting Cookies
Description
This cookie is generally provided by rlcdn.com and is used for advertising purposes.
.scope.org.uk
Name
ruds
Host
.scope.org.uk
Duration
Session
Type
Third-party
Category
Targeting Cookies
Description
Registers anonymous user data, such as IP address, geographical location, visited websites, and what ads the user has clicked.
.scope.org.uk
Name
sc_at
Host
.scope.org.uk
Duration
1 year
Type
Third-party
Category
Targeting Cookies
Description
Used to identify a visitor across multiple domains.
.scope.org.uk
Name
UID
Host
.scope.org.uk
Duration
1 year
Type
Third-party
Category
Targeting Cookies
Description
This cookie provides a uniquely assigned, machine-generated user ID and gathers data about activity on the website. This data may be sent to a third party for analysis and reporting.
.scope.org.uk
Name
uuid2
Host
.scope.org.uk
Duration
3 months
Type
Third-party
Category
Targeting Cookies
Description
This cookie allows targeted advertising through the App Nexus platform - collects anonymous data on ad views IP address, page views, and more.
.scope.org.uk
Name
_kuid_
Host
.scope.org.uk
Duration
6 months
Type
Third-party
Category
Targeting Cookies
Description
This cookie carries out information about how the end user uses the website and any advertising that the end user may have seen before visiting the said website.
.scope.org.uk
Name
_scid
Host
.scope.org.uk
Duration
1 year and 1 month
Type
Third-party
Category
Targeting Cookies
Description
Used to help identify a visitor.
.scope.org.uk
Name
dmSessionID
Host
.scope.org.uk
Duration
Persistent
Type
Third-party
Category
Targeting Cookies
Description
A session ID is a unique number that a website's server assigns a specific user for the duration of that user's visit (session). The session ID can be stored as a cookie, form field, or URL (Uniform Resource Locator). Some Web servers generate session IDs by incrementing static numbers.
.scope.org.uk
Name
tap.php
Host
.scope.org.uk
Duration
Persistent
Type
Third-party
Category
Targeting Cookies
Description
Used to register anonymous user data, such as IP address, geographical location, visited websites, and what ads the user has clicked, with the purpose of optimising ad display based on the user's movement on websites that use the same ad network.
.scope.org.uk
Name
YSC
Host
.scope.org.uk
Duration
Session
Type
Third-party
Category
Targeting Cookies
Description
YouTube is a Google owned platform for hosting and sharing videos. YouTube collects user data through videos embedded in websites, which is aggregated with profile data from other Google services in order to display targeted advertising to web visitors across a broad range of their own and other websites.
.scope.org.uk
Name
_fbp
Host
.scope.org.uk
Duration
Persistent
Type
Third-party
Category
Targeting Cookies
Description
Facebook targeting and advertising persistent cookie. Used by Facebook to deliver a series of advertisement products such as real time bidding from third party advertisers.
- Home
- Search
PVL
Hi. My son has just been diagnosed with PVL. I have been told that PVL could be classed as cerebral palsy, so have assumed this is the case. Have I made the right assumption?!? Thanks!
Discussion in Children, parents, and families - 25 Jan 2015
Scope community
New PVL dignosis
My Grandaughter was born at 30 weeks and yesterday at 35 weeks was diagnosed with PVL. The family is of course devastated, especially my daughter and her husband. They are in the early grieving stage, ...
Discussion in Start here and say hello! - 7 Jul 2018
Scope community
Baby Daughter with PVL
Hi, my 6 month old Daughter was born 9 weeks premature, at birth she was diagnosed with PVL in her brain. Since then she has had a rough start... severe reflux, milk protein allergies, seizures... We ...
Discussion in Children, parents, and families - 27 Mar 2017
Scope community
Recent 'diagnosis' of pvl spastic diplegia cerebal palsy
Morning, I have 3.5 year old twin boys, 1 of which has been 'diagnosed' with very mild pvl spastic diplegia cp. He had an MRI at the beginning of September and the consultant rang me to give me the ...
Discussion in Cerebral palsy - 6 Oct 2019
Scope community
PVL - helpful therapies and approaches? Advice please...
Hi all, I'm new around here and I have a nephew (15 months) who has recently been diagnosed with PVL and some genetic abnormalities. He is globally delayed and under a paeds neurologist and a physio ...
Discussion in Children, parents, and families - 29 Apr 2021
Scope community
Does your child have PVL and Spastic Quadriplegic? Would like some support please
Hello, I'm new in this site. I have a child 6 weeks earlier delivered and he will be 1 year old this 29th of December. The MRI showed that he has bilateral extensive white matter loss damage PVL ...
Discussion in Children, parents, and families - 18 Dec 2018
Scope community
Looking for parents of children with PVL and CP
Hi all, I'm Jodie, I'm 30 years old and a Mum of two. A boy and a girl. My girl is 13 weeks old and neurotypical. My boy is 2 years and 4 months, he has been diagnosed with Pereventricular ...
Discussion in Children, parents, and families - 28 Sep 2021
Scope community
Looking for parents of children with CP and PVL
Hi all, I'm Jodie, I'm 30 years old and a Mum of two. A boy and a girl. My girl is 13 weeks old and neurotypical. My boy is 2 years and 4 months, he has been diagnosed with Pereventricular ...
Discussion in Cerebral palsy - 28 Sep 2021
Scope community
Is PVL a disability or will it lead to one?
My son was diagnosed with severe PVL on both sides of the brain mainly left side and was told his gross and motor skills will be affected as well as learning difficulties later on in life. My main ...
Discussion in Children, parents, and families - 5 Sep 2015
Scope community