You may have forgotten what the professionals told you or have more questions about your child's condition. It's OK to ask for someone to go over the information again. Ask for a written summary if this will help.
Charities and other voluntary organisations also provide useful information and advice. Please bear in mind that not all information online is by medical experts.
The charity Contact has an extensive A to Z of conditions. There's information on support organisations, symptoms, causes, diagnosis and treatment.
There's a range of local services to support disabled children and their parents. These can be anything from daycare and financial help from your local authority to Disabled People’s Organisations (DPOs) support.
You may also be able to get leisure discounts. These can include reduced entry to cinemas, museums or leisure parks. Check with the company about their concessions policy. Browse our leisure tips for more information.