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CMT

Hi my name is Helen my 15 year old daughter has CMT or also known as HMSN Hereditary Motor Sensory Neuropathy it is a rare muscle wasting disease which affects the hands & feet mainly but there are ...

Profile picture of the author Discussion in Parents and carers - 22 Jun 2017

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Eating difficulties

How to tackle problems eating and drinking for disabled children or adults. These can include acid reflux, swallowing (dysphagia) and sensory issues.

Neuropathy

I was diagnosed with diabetes in 2007. Gradually over the years I started to get pain in my hands and feet. I started with burning and tingling sensation and the pain was unbearable. I was put on ...

Profile picture of the author Discussion in Rare, invisible, and undiagnosed conditions - 11 Oct 2021

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I would love some advice on my University project involving sensory impairments!

Hi everyone, I'm a design student and I've recently took up a project which involves making learning through play accessible for all children, particularly, I chose to focus on visually impaired ...

Profile picture of the author Discussion in Sensory impairments - 27 Oct 2021

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Hi, my name is yvojo28! I've just been diagnosed with peripheral neuropathy

Newby here. Just been diagnosed with peripheral neuropathy. Still learning what to expect

Profile picture of the author Discussion in Rare, invisible, and undiagnosed conditions - 19 Oct 2021

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One eye surgery but 2 eyes needed

Hi I am booked in for cataract surgery, but they are only doing one eye at the moment and the other one can take up to 12 to 18 months to get done. I am very worried about this as i live ...

Profile picture of the author Discussion in Sensory impairments - 26 Nov 2021

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Possible superior semi-circular canal dehiscence visual disturbance

Hi. I am having symptoms that seem to point to Superior semi-circular canal dehiscence. I hear a low-pitched rubbing sound in my right ear when I move my eyes and other symptoms though thankfully not ...

Profile picture of the author Discussion in Sensory impairments - 19 Nov 2021

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Should I register blind?

I am currently waiting for PIP and severe disability payments to be re-instated and am on ESA, not on UC. I am sight impaired and not permitted to drive. Are there any advantages/disadvantages to ...

Profile picture of the author Discussion in Sensory impairments - 28 Oct 2021

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I was diagnosed with partial deafness around 3 years ago. I'm wondering about lip reading classes

Good morning everyone, my name is Nadina I was diagnosed with partial deafness around three years ago , and was just wondering about doing lip reading classes to help as it is steadily getting worse ...

Profile picture of the author Discussion in Sensory impairments - 23 Oct 2021

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Hi, my name is Azambanoo! New tactile alphabet for visually impaired and sighted people

Hi, would anyone be interested to know about iAlphabet, a new tactile alphabet for visually impaired and sighted people as well. iAlphabet is an easy way for casual hand writing with no need for any ...

Profile picture of the author Discussion in Sensory impairments - 21 Oct 2021

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