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CMT

Hi my name is Helen my 15 year old daughter has CMT or also known as HMSN Hereditary Motor Sensory Neuropathy it is a rare muscle wasting disease which affects the hands & feet mainly but there are ...

Profile picture of the author Discussion in Parents and carers - 22 Jun 2017

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Eating difficulties

Eating difficulties for disabled children including acid reflux, swallowing (dysphagia) and sensory issues.

Neuropathy

I was diagnosed with diabetes in 2007. Gradually over the years I started to get pain in my hands and feet. I started with burning and tingling sensation and the pain was unbearable. I was put on ...

Profile picture of the author Discussion in Rare, invisible, and undiagnosed conditions - 11 Oct 2021

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Hi, my name is DavidGoldstein! I have congenital glaucoma and am near-sighted

Hi, I am David, I was born in late 1964 with congenital glaucoma. I am also near-sighted. Quite frankly, that combination sucks. I have had 17 operations on my eyes – including a couple of ...

Profile picture of the author Discussion in Sensory impairments - 25 Jan 2022

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I would love some advice on my University project involving sensory impairments!

Hi everyone, I'm a design student and I've recently took up a project which involves making learning through play accessible for all children, particularly, I chose to focus on visually impaired ...

Profile picture of the author Discussion in Sensory impairments - 27 Oct 2021

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I'm partially sighted, but feel embarrassed and self-concscious about using my symbol cane

I have been registered partially sighted almost three years. I have Stargardts, glaucoma and thickening corneas. In recent months I have noticed myself that my sight is getting worse, I have a lot of ...

Profile picture of the author Discussion in Sensory impairments - 14 Jan 2022

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#cpcarers

I am a blind young women from Derbyshire I am campaigning to encourage as many brands as possible to make a start in putting a basic Braille label on as many products as possible including the ...

Profile picture of the author Discussion in Sensory impairments - 14 Dec 2021

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Support and advice needed. How do I overcome feelings of self consciousness when using a white cane?

I am a young woman of 30 with ushers. I have night blindness and recently accepted this emotionally. I have just got a white cane and very uneasy about using this, I know it's for the best but how do ...

Profile picture of the author Discussion in Sensory impairments - 8 Dec 2021

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Hi, my name is yvojo28! I've just been diagnosed with peripheral neuropathy

Newby here. Just been diagnosed with peripheral neuropathy. Still learning what to expect

Profile picture of the author Discussion in Rare, invisible, and undiagnosed conditions - 19 Oct 2021

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One eye surgery but 2 eyes needed

Hi I am booked in for cataract surgery, but they are only doing one eye at the moment and the other one can take up to 12 to 18 months to get done. I am very worried about this as i live ...

Profile picture of the author Discussion in Sensory impairments - 26 Nov 2021

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