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23 matches found

cerebellar ataxia

I’m Alan and sadly I have cerebellar ataxia so I have difficulty walking and talking . 3 years ago I was ok

Profile picture of the author Discussion in Rare, invisible, and undiagnosed conditions - 18 Aug 2019

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Cerebellar Ataxia

My husband has a progressive brain condition Cerebellar Ataxia so is no longer able to work.

Profile picture of the author Discussion in Rare, invisible, and undiagnosed conditions - 18 Apr 2018

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Cerebellar Ataxia

Has anyone got any help or advice please to help my adult son lead an independent life, He is unable to walk very far with out support, and at the moment cannot get a job . either. Are there groups ...

Profile picture of the author Discussion in Rare, invisible, and undiagnosed conditions - 5 May 2017

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Cerebellar Ataxia

I an new member from Sweden. I am a 47 years old male. 13 years ago my neurologic doctor investigated me and told me I had a neurologic disability I did not knew I had. He said that my neurologic ...

Profile picture of the author Discussion in Rare, invisible, and undiagnosed conditions - 19 Nov 2016

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Pip stopped Why

hii I have cerebellar ataxia and hemiphlegic migraine and last October I had to go to pip appeal for pip I won and was awarded full care and mobility . I have had to apply again for pip and do a face ...

Profile picture of the author Discussion in Disability rights and campaigning - 29 Jul 2016

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Hi, my name is celtic1888!

I have cerebellar ataxia. I use a 3 wheeled walker and wheelchair coz cant walk any distance. Stay in house with stairs. Cant get ground floor flat. Been on waiting list for years and have max. points ...

Profile picture of the author Discussion in Start here and say hello! - 3 Mar 2015

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Hi, my name is peterbee!

Hello - I am new to this: I have cerebellar ataxia and COPD. My walking is getting worse and I am fearful of the future. I realise that many/most people on this site have much worse problems than ...

Profile picture of the author Discussion in Start here and say hello! - 3 Dec 2017

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Parent Carer

I have Multiple Sclerosis, and I am ParentCarer for my 17 year old son who has SpinoCerebellar Ataxia Types 1516, 28, and 29. I also have a 14 year old daughter, who is able bodied. Oh - and I’m a ...

Profile picture of the author Discussion in Children, parents, and families - 7 Apr 2019

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Hi, my name is Paulette40!

Initial PIP consultation gave my partner "standard" living needs rate and nothing for "mobility" needs. I sent a letter for the mandatory reconsideration (this took 4 months for their decision). I ...

Profile picture of the author Discussion in Benefits and financial support - 21 Aug 2017

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Hi, my name is pheonix62!

hello hope you can help , I suffer from cerebellar ataxia which is affecting my balance ,I love to go pillion with my husband on our motorcycle ,the problem is I cant seem to find a walker that is ...

Profile picture of the author Discussion in Start here and say hello! - 13 Aug 2018

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