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PVL

Hi. My son has just been diagnosed with PVL. I have been told that PVL could be classed as cerebral palsy, so have assumed this is the case. Have I made the right assumption?!? Thanks!

Profile picture of the author Discussion in Children, parents, and families - 25 Jan 2015

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PVL

Hi. My son has just been diagnosed with PVL. I have been told that PVL could be classed as cerebral palsy, so have assumed this is the case. Have I made the right assumption?!? Thanks!

Profile picture of the author Discussion in Cerebral palsy - 25 Jan 2015

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New PVL dignosis

My Grandaughter was born at 30 weeks and yesterday at 35 weeks was diagnosed with PVL. The family is of course devastated, especially my daughter and her husband. They are in the early grieving stage, ...

Profile picture of the author Discussion in Start here and say hello! - 7 Jul 2018

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Is PVL a disability or will it lead to one?

My son was diagnosed with severe PVL on both sides of the brain mainly left side and was told his gross and motor skills will be affected as well as learning difficulties later on in life. My main ...

Profile picture of the author Discussion in Children, parents, and families - 5 Sep 2015

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Baby Daughter with PVL

Hi, my 6 month old Daughter was born 9 weeks premature, at birth she was diagnosed with PVL in her brain. Since then she has had a rough start... severe reflux, milk protein allergies, seizures... We ...

Profile picture of the author Discussion in Children, parents, and families - 27 Mar 2017

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PVL - helpful therapies and approaches? Advice please...

Hi all, I'm new around here and I have a nephew (15 months) who has recently been diagnosed with PVL and some genetic abnormalities. He is globally delayed and under a paeds neurologist and a physio ...

Profile picture of the author Discussion in Children, parents, and families - 29 Apr 2021

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Looking for parents of children with CP and PVL

Hi all, I'm Jodie, I'm 30 years old and a Mum of two. A boy and a girl. My girl is 13 weeks old and neurotypical. My boy is 2 years and 4 months, he has been diagnosed with Pereventricular ...

Profile picture of the author Discussion in Cerebral palsy - 28 Sep 2021

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Hi, I have pvl and want to speak to others with it

I have pvl and and in my early 20s I find it annoying that I can't find people my age who also have this sure there are groups for people with cp but that's still different true lvl can cause cp or ...

Profile picture of the author Discussion in Disability rights and campaigning - 3 Dec 2017

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My 5 yr old just diagnosed with PVL and CP

Following an MRI my 5 year old daughter has just been given a diagnosis of PVL&CP so I am now looking to find as much ingormation as possible xxx

Profile picture of the author Discussion in Cerebral palsy - 9 Mar 2018

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Looking for parents of children with PVL and CP

Hi all, I'm Jodie, I'm 30 years old and a Mum of two. A boy and a girl. My girl is 13 weeks old and neurotypical. My boy is 2 years and 4 months, he has been diagnosed with Pereventricular ...

Profile picture of the author Discussion in Children, parents, and families - 28 Sep 2021

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