There seems to be a discrepancy in the way carers are trained to administer gastrostomy feeds in the community. I was taught never to use the plunger on a syringe unless absolutely necessary e.g. for ...
Discussion in Cerebral palsy - 10 Nov 2014
I have a 3 year old who is severely disabled with cerebral palsy he currently drinks from a bottle perfectly I have tried him with beaker but he gets upset as cannot find the spout. His speech ...
Discussion in Cerebral palsy - 19 Oct 2018
I don’t know about anyone else but maybe you could share ? I like looking after the birds & a couple of grey squirrels this winter. Because I always feed the birds every day & change their water no ...
Discussion in Coffee lounge - 4 Nov 2023
Hi guys I know I just posted but I had one more question: I am beginning to see my disability differently in terms of feeding. Last year I didn’t care what I would look like and sometimes I would ...
Discussion in Cerebral palsy - 19 Feb 2020
My son is now 3.5 years old and so far has been diagnosed with PVL leading to CP, sensory processing disorder, speech & language delay & disorder, dairy intolerance and failure to thrive. It's the ...
Discussion in Children, parents, and families - 18 Mar 2013
Hi... So that probably sounds crazy. For years now I've suffered from the inability to gain weight. I've recently been dropping I'm at a BMI of 15.6 which isn't super low, but things are only getting ...
Discussion in Disability rights and campaigning - 28 Mar 2019
I am a new mum! With mild CP I am struggling to get my hands and arms in the right position to bottle feed my daughter. She does take it but it is a super long & uncomfortable process. has anyone got ...
Discussion in Children, parents, and families - 17 Aug 2020
The heading of this sounds like we are new to this but Noah, our 5 year old son, has had a PEGJ since being 5 months old. We are SO frustrated right now. Noah had undergone very few tests to get to ...
Discussion in Children, parents, and families - 1 Feb 2023
Hi I am new to this site. My daughter had a baby girl in july 2016. When she was born my daughter tried to breast feed but baby just wasn't happy. So she was bottle fed. She was taking bottles fine ...
Discussion in Children, parents, and families - 20 Aug 2017
Hi having some trouble with my daughters mickey button always really sore and red and getting a lot of discomfort with it she’s had the same button since she was three tried the next size and it’s too ...
Discussion in Children, parents, and families - 26 Apr 2020
