Hello, Has anyone went through DBS or know somebody who had it, any feedbacks please? we have been offered by Dr to help reduce athetoids /dystonia. Just hoping to hear anyones experience? Evidence ...
Discussion in Cerebral palsy - 26 Aug 2013
Hi my name is Shannon I'm am a mild cp suffer I'm just about to go through some treatment of brain stimulation I'm very nervous but just wondering if any one else has tried it. Shannon
Discussion in Cerebral palsy - 2 Jun 2019
Hello my name is clare and I am new to this group thank you 4 years ago I got told my brain was in my neck since then I have had half my brain skull and spine cut out. In hull there is just no help ...
Discussion in Start here and say hello! - 11 Feb 2020
Hi, I've been up since 3.30 again,,, it's driving me mad,,, I tried to stay up past 11pm so I can get back to a normal pattern. It doesn't work. I wake up and I am reliving things I don't want to talk ...
Discussion in Mental health and wellbeing - 15 Dec 2022
Hi I have my first appointment for this soon & wondered if anyone with CP Diplegia has tried it & how it works for them? I'm in my late 50s & can't wait to give it a try. I'm hoping for no more ...
Discussion in Cerebral Palsy Network - 16 Apr 2025
Hi my name is martin became disabled in 2019 due to Cudia Equina major life changing spinal surgery and again in 2020 as they had to do it again on two discs above the originals.
Discussion in Start here and say hello! - 22 Aug 2022
Is a brain injury classified as a disability
Discussion in Disability rights and campaigning - 13 Apr 2019
Hi I had a bleed on the brain , about 7 weeks ago, it happened out of the blue, I'm scared it will happen again, I cry, I have constant headaches, family say I'm not the same, when I'm tired my speech ...
Discussion in Disability rights and campaigning - 6 Oct 2018
I had an accident 25 years ago and suffered a severe brain injury and have never worked since. IT is a constant fight with the benefits people as they do not see that I am disabled. Is there anybody ...
Discussion in Benefits and financial support - 19 Jun 2017
I have a brain injury. Had meningioma removal in July 2012 then Bacterial Meningitis Oct 2012. Nov 2012 had 2nd opening of skull to mend CSF leak from 1st Operation. Now have seizures, depression ...
Discussion in Rare, invisible, and undiagnosed conditions - 29 Apr 2019
