Usher Syndrome
Hello. Was wondering if anyone else has usher syndrome ?
Discussion in Talk about your impairment - 16 Aug 2021
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Down Syndrome
Hi all I have a 26 yr old daughter with down Syndrome mosaic.Are there any members on here with a child with the same diagnosis.
Discussion in Children, parents, and families - 12 Nov 2019
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Irlen syndrome
I have condition called Irlen syndrome and I am ambassador for my condition. I like raising awareness for my condition and feel more needs to be done as in schools many children are going undiagnosed ...
Discussion in Rare, invisible, and undiagnosed conditions - 22 Nov 2018
Scope community
Down's syndrome
I have a 19 year old daughter with Down's syndrome. She also had a heart defect at birth. I'm happy to talk if anyone wants to know about my experiences and have a friendly chat with anyone in the ...
Discussion in Children, parents, and families - 23 Sep 2018
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Hypermobilty Syndrome
Hello I am still quite new to using the forum and I am so grateful for the advice and information I have been given since finding Scope. I wasn't sure where to post this - but I am wondering if there ...
Discussion in Talk about your impairment - 1 Nov 2024
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Achenbach Syndrome
Apologies, I didn’t realise I posted this on someone else thread. Diagnosed with Achenbach Syndrome presents on my hands and toes, starts with a burning heat that itches and feels like I’ve been stung ...
Discussion in Rare, invisible, and undiagnosed conditions - 4 Mar 2024
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Bechet syndrome and cushings
Hi, Looking for any one who has Behcet syndrome and cushings (due to medication)
Discussion in Disability rights and campaigning - 5 Oct 2018
Scope community
Tourettes syndrome
Hi everyone, My name is Helen and I live in Pembrokeshire with my husband and 3 girls. My 16 year old is autistic and my 13 year old has tourettes syndrome, adhd and is selective mute. I am ...
Discussion in Rare, invisible, and undiagnosed conditions - 21 Jul 2021
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Fragile X Syndrome
Hi everyone, my name is Ali. I am 42 and the mother of 4 boys, 15, 17, 19, & 20. My two younger boys have Fragile X Syndrome. My 15 yr old is mentally about 10, but my 17 yr old is mentally 3 & always ...
Discussion in Children, parents, and families - 31 Jan 2023
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Goodpastures Syndrome
Hi all New here and was wondering if anyone else here had a diagnosis of of Goodpastures Syndrome? I was diagnosed a few months ago after being ill and ending up in a coma in hospital. I know very ...
Discussion in Rare, invisible, and undiagnosed conditions - 27 Jun 2024
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