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1255 matches found

Usher Syndrome

Hello. Was wondering if anyone else has usher syndrome ?

Profile picture of the author Discussion in Sensory impairments - 16 Aug 2021

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Hi, my name is SoniaJaneFazz!

Hi all. I'm Sonia, aged 43 and I have Usher Syndrome Type 3 ie Blind and partially deaf and many other health issues.

Profile picture of the author Discussion in Start here and say hello! - 27 Jan 2018

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Hello

Hello, my name is malc66. I have Usher Syndrome and have been registered blind for quite a few years.

Profile picture of the author Discussion in Start here and say hello! - 16 Aug 2021

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Isolated: waiting list for a guide dog

Hey I am new to here I have usher syndrome and am registered SSI/blind ( due to retinitis pigmentosa) and on waiting list for a guide dog I find it so hard to make friends , miss going out for ...

Profile picture of the author Discussion in Disability rights and campaigning - 8 Jan 2020

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Down Syndrome

Hi all I have a 26 yr old daughter with down Syndrome mosaic.Are there any members on here with a child with the same diagnosis.

Profile picture of the author Discussion in Children, parents, and families - 12 Nov 2019

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Down's syndrome

I have a 19 year old daughter with Down's syndrome. She also had a heart defect at birth. I'm happy to talk if anyone wants to know about my experiences and have a friendly chat with anyone in the ...

Profile picture of the author Discussion in Children, parents, and families - 23 Sep 2018

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susac syndrome

I have susac syndrome anyone on here with it?

Profile picture of the author Discussion in Disability rights and campaigning - 20 Sep 2018

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Irlen syndrome

I have condition called Irlen syndrome and I am ambassador for my condition. I like raising awareness for my condition and feel more needs to be done as in schools many children are going undiagnosed ...

Profile picture of the author Discussion in Rare, invisible, and undiagnosed conditions - 22 Nov 2018

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Bechet syndrome and cushings

Hi, Looking for any one who has Behcet syndrome and cushings (due to medication)

Profile picture of the author Discussion in Disability rights and campaigning - 5 Oct 2018

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Rett Syndrome

Just wondering if there are any parents caring for a child with Rett Syndrome?

Profile picture of the author Discussion in Children, parents, and families - 30 Oct 2019

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